Influence of Social Networks on Cancer Survivors' Self-management Support: A Mixed Methods Study

Overview

Journal Eur J Cancer Care (Engl)

Publisher Wiley

Specialties Nursing
Oncology

Date 2022 Apr 13

PMID 35416341

Authors

Gilly Howard-Jones

Ivaylo Vassilev

Debora Fenlon

Sean Ewings

Alison Richardson

Affiliations

Soon will be listed here.

Abstract

Objective: The role of social networks, especially weaker ties (e.g. casual acquaintances and hobby groups), in self-management of long-term consequences of cancer is unexplored. This study aimed to explore the structure of cancer survivors' social networks and their contribution to self-management support and health-related quality of life (HRQoL).

Methods: The study used a sequential, exploratory mixed methods design. Phase 1 surveyed 349 lymphoma, colorectal, breast and prostate cancer survivors. Phase 2 analysed 20 semi-structured interviews with respondents recruited from Phase 1.

Results: Phase 1 results suggested participants' HRQoL increased if they participated in an exercise group, if their self-management skills increased, and social distress and negative illness perception decreased (p < 0.0005 adj. R = 0.631). These findings were explored in Phase 2, identifying underlying mechanisms. Four themes were identified: disrupted networks after cancer treatment; navigating formal support and building individual capacity; peer networks and self-management knowledge and linking networks to enable adaptation in recovery.

Conclusions: This study suggests engagement with community groups, particularly those not directly related to illness management and social interaction with weak ties, make a valuable contribution to self-management support, increase HRQoL and enhance well-being.

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