Will the Trilogue on the EU Data Protection Regulation Recognise the Importance of Health Research?

Overview

Journal Eur J Public Health

Publisher Oxford University Press

Specialty Public Health

Date 2015 Aug 13

PMID 26265364

Citations 11

Authors

R Coppen

E B van Veen

P P Groenewegen

J M W Hazes

J D de Jong

J Kievit

J N D de Neeling

S A Reijneveld

R A Verheij

E Vroom

Affiliations

Soon will be listed here.

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References

Stevenson F, Lloyd N, Harrington L, Wallace P . Use of electronic patient records for research: views of patients and staff in general practice. Fam Pract. 2012; 30(2):227-32. DOI: 10.1093/fampra/cms069. View

Kuchinke W, Ohmann C, Verheij R, Van Veen E, Arvanitis T, Taweel A . A standardised graphic method for describing data privacy frameworks in primary care research using a flexible zone model. Int J Med Inform. 2014; 83(12):941-57. DOI: 10.1016/j.ijmedinf.2014.08.009. View

Ploem M, Essink-Bot M, Stronks K . Proposed EU data protection regulation is a threat to medical research. BMJ. 2013; 346:f3534. DOI: 10.1136/bmj.f3534. View

Nyren O, Stenbeck M, Gronberg H . The European Parliament proposal for the new EU General Data Protection Regulation may severely restrict European epidemiological research. Eur J Epidemiol. 2014; 29(4):227-30. PMC: 4033829. DOI: 10.1007/s10654-014-9909-0. View

Drazen J . Sharing individual patient data from clinical trials. N Engl J Med. 2015; 372(3):201-2. DOI: 10.1056/NEJMp1415160. View