Adults with Autism: Outcomes, Family Effects, and the Multi-family Group Psychoeducation Model

Overview

Journal Curr Psychiatry Rep

Publisher Current Science

Specialty Psychiatry

Date 2012 Sep 28

PMID 23015048

Citations 25

Authors

Leann E Smith

Jan S Greenberg

Marsha R Mailick

Affiliations

Soon will be listed here.

Abstract

Although an increasing number of individuals with autism spectrum disorders are entering adulthood, currently there are few evidence-based programs for individuals later in the life course. In this paper we present an overview of recent research on outcomes for adolescents and adults with ASD and highlight the role of the family for individuals with ASD during the transition to adulthood. We also discuss multi-family group psychoeducation as a promising model for use with individuals with ASD who are transitioning to adulthood.

Citing Articles

Prevalence of Autism Spectrum Disorder in the Centro region of Portugal: a population based study of school age children within the ASDEU project.

Rasga C, Santos J, Cafe C, Oliveira A, Duque F, Posada M Front Psychiatry. 2023; 14:1148184.

PMID: 37711428 PMC: 10499322. DOI: 10.3389/fpsyt.2023.1148184.

Deviation scores: An innovative approach to interpreting cognitive test results for individuals with intellectual disabilities.

Talapatra D, Snider L, Coleman J, Thompson T, Reinhardt J, Hessl D J Appl Res Intellect Disabil. 2023; 36(6):1218-1228.

PMID: 37553958 PMC: 10591767. DOI: 10.1111/jar.13137.

Examining indicators of psychosocial risk and resilience in parents of autistic children.

Nunnally A, Factor R, Sturm A, Soorya L, Wainer A, Taylor S Front Behav Neurosci. 2023; 17:1102516.

PMID: 37255619 PMC: 10226532. DOI: 10.3389/fnbeh.2023.1102516.

A Pilot Trial of a Manualized Psychoeducation Module for Parents of Children with Autism with Intellectual Disability and Intellectual Disability Alone.

Kumari N, Bhatia T, Chakraborty S, Balsavar A, Deshpande S Indian J Soc Psychiatry. 2023; 36(3):243-253.

PMID: 37078001 PMC: 10112834.

Preliminary efficacy of cognitive-behavioral therapy on emotion regulation in adults with autism spectrum disorder: A pilot randomized waitlist-controlled study.

Kuroda M, Kawakubo Y, Kamio Y, Yamasue H, Kono T, Nonaka M PLoS One. 2022; 17(11):e0277398.

PMID: 36417403 PMC: 9683545. DOI: 10.1371/journal.pone.0277398.

References

Lawer L, Brusilovskiy E, Salzer M, Mandell D . Use of vocational rehabilitative services among adults with autism. J Autism Dev Disord. 2008; 39(3):487-94. DOI: 10.1007/s10803-008-0649-4. View

Baker J, Smith L, Greenberg J, Seltzer M, Taylor J . Change in maternal criticism and behavior problems in adolescents and adults with autism across a 7-year period. J Abnorm Psychol. 2011; 120(2):465-75. PMC: 3062950. DOI: 10.1037/a0021900. View

Magana A, Goldstein J, Karno M, Miklowitz D, Jenkins J, Falloon I . A brief method for assessing expressed emotion in relatives of psychiatric patients. Psychiatry Res. 1986; 17(3):203-12. DOI: 10.1016/0165-1781(86)90049-1. View

Shattuck P, Wagner M, Narendorf S, Sterzing P, Hensley M . Post-high school service use among young adults with an autism spectrum disorder. Arch Pediatr Adolesc Med. 2011; 165(2):141-6. PMC: 3097532. DOI: 10.1001/archpediatrics.2010.279. View

Smith L, Greenberg J, Seltzer M, Hong J . Symptoms and behavior problems of adolescents and adults with autism: effects of mother-child relationship quality, warmth, and praise. Am J Ment Retard. 2008; 113(5):387-402. PMC: 2826841. DOI: 10.1352/2008.113:387-402. View

Cox M, Paley B . Families as systems. Annu Rev Psychol. 1997; 48:243-67. DOI: 10.1146/annurev.psych.48.1.243. View

McFarlane W, Dixon L, Lukens E, Lucksted A . Family psychoeducation and schizophrenia: a review of the literature. J Marital Fam Ther. 2003; 29(2):223-45. DOI: 10.1111/j.1752-0606.2003.tb01202.x. View

Miklowitz D, George E, Richards J, Simoneau T, Suddath R . A randomized study of family-focused psychoeducation and pharmacotherapy in the outpatient management of bipolar disorder. Arch Gen Psychiatry. 2003; 60(9):904-12. DOI: 10.1001/archpsyc.60.9.904. View

Taylor J, Seltzer M . Changes in the autism behavioral phenotype during the transition to adulthood. J Autism Dev Disord. 2010; 40(12):1431-46. PMC: 2910794. DOI: 10.1007/s10803-010-1005-z. View

10.

Smith L, Maenner M, Seltzer M . Developmental trajectories in adolescents and adults with autism: the case of daily living skills. J Am Acad Child Adolesc Psychiatry. 2012; 51(6):622-31. PMC: 3361701. DOI: 10.1016/j.jaac.2012.03.001. View

11.

Herring S, Gray K, Taffe J, Tonge B, Sweeney D, Einfeld S . Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: associations with parental mental health and family functioning. J Intellect Disabil Res. 2006; 50(Pt 12):874-82. DOI: 10.1111/j.1365-2788.2006.00904.x. View

12.

Shattuck P, Seltzer M, Greenberg J, Orsmond G, Bolt D, Kring S . Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. J Autism Dev Disord. 2006; 37(9):1735-47. PMC: 3265360. DOI: 10.1007/s10803-006-0307-7. View

13.

Arnett J . Emerging adulthood. A theory of development from the late teens through the twenties. Am Psychol. 2000; 55(5):469-80. View

14.

Howlin P, Alcock J, Burkin C . An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome. Autism. 2005; 9(5):533-49. DOI: 10.1177/1362361305057871. View

15.

Shattuck P, Narendorf S, Cooper B, Sterzing P, Wagner M, Taylor J . Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics. 2012; 129(6):1042-9. PMC: 3362908. DOI: 10.1542/peds.2011-2864. View

16.

Duarte C, Bordin I, Yazigi L, Mooney J . Factors associated with stress in mothers of children with autism. Autism. 2005; 9(4):416-27. DOI: 10.1177/1362361305056081. View

17.

Seltzer M, Greenberg J, Hong J, Smith L, Almeida D, Coe C . Maternal cortisol levels and behavior problems in adolescents and adults with ASD. J Autism Dev Disord. 2009; 40(4):457-69. PMC: 2837763. DOI: 10.1007/s10803-009-0887-0. View

18.

Gurney J, Fritz M, Ness K, Sievers P, Newschaffer C, Shapiro E . Analysis of prevalence trends of autism spectrum disorder in Minnesota. Arch Pediatr Adolesc Med. 2003; 157(7):622-7. DOI: 10.1001/archpedi.157.7.622. View

19.

Baker B, Heller T, Henker B . Expressed emotion, parenting stress, and adjustment in mothers of young children with behavior problems. J Child Psychol Psychiatry. 2000; 41(7):907-15. View

20.

Greenberg J, Seltzer M, Hong J, Orsmond G . Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. Am J Ment Retard. 2006; 111(4):229-49. DOI: 10.1352/0895-8017(2006)111[229:BEOEEA]2.0.CO;2. View