Victoria Hedley
Overview
Explore the profile of Victoria Hedley including associated specialties, affiliations and a list of published articles.
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Articles
9
Citations
93
Followers
0
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Recent Articles
1.
Turner M, Kalra D, Cornet R, Palmeri A, Sen A, Owen J, et al.
Arch Dis Child
. 2025 Jan;
110(3):177-179.
PMID: 39848700
No abstract available.
2.
Hedley V, Bolz-Johnson M, Hernando I, Kenward R, Nabbout R, Romero C, et al.
Orphanet J Rare Dis
. 2023 Sep;
18(1):272.
PMID: 37670358
Notwithstanding two decades of policy and legislation in Europe, aimed to foster research and development in rare conditions, only 5-6% of rare diseases have dedicated treatments. Given with the huge...
3.
Sen A, Palmeri A, Lee J, Hedley V, Thuet J, Lignon P, et al.
Int J Health Plann Manage
. 2022 Nov;
38(2):416-429.
PMID: 36335084
Introduction: The conect4children (c4c) consortium was setup to facilitate the development of new drugs and therapies for paediatric populations and address key challenges associated with paediatric clinical trials. Two of...
4.
Hedley V, Bottarelli V, Weinman A, Taruscio D
J Community Genet
. 2021 May;
12(2):207-216.
PMID: 33950416
Addressing the many challenges posed by rare diseases to patients, families, and society at large demands a specific national (as well as transnational) focus. Historically, the practice of elaborating and...
5.
Tumiene B, Kristoffersson U, Hedley V, Kaariainen H
J Community Genet
. 2021 May;
12(2):205-206.
PMID: 33945116
No abstract available.
6.
Wise J, de Barron A, Splendiani A, Balali-Mood B, Vasant D, Little E, et al.
Drug Discov Today
. 2019 Jan;
24(4):933-938.
PMID: 30690198
Biopharmaceutical industry R&D, and indeed other life sciences R&D such as biomedical, environmental, agricultural and food production, is becoming increasingly data-driven and can significantly improve its efficiency and effectiveness by...
7.
Baynam G, Bowman F, Lister K, Walker C, Pachter N, Goldblatt J, et al.
Adv Exp Med Biol
. 2017 Dec;
1031:55-94.
PMID: 29214566
Public health relies on technologies to produce and analyse data, as well as effectively develop and implement policies and practices. An example is the public health practice of epidemiology, which...
8.
Lynn S, Hedley V, Atalaia A, Evangelista T, Bushby K
Eur J Med Genet
. 2017 Jan;
60(3):185-189.
PMID: 28087401
Joint Actions are successful initiatives from the European Commission (EC) that have helped to raise awareness and to bring significant benefit to those suffering from a rare disease (RD). In...
9.
Pohjola P, Hedley V, Bushby K, Kaariainen H
Eur J Hum Genet
. 2016 Jul;
24(11):1547-1552.
PMID: 27381091
As the availability of genetic tests has grown rapidly during the last decade along with the increasing knowledge of the genetic background of rare inherited diseases, sending DNA samples to...
10.
Evangelista T, Hedley V, Atalaia A, Johnson M, Lynn S, Le Cam Y, et al.
Orphanet J Rare Dis
. 2016 Feb;
11:17.
PMID: 26911987
Background: In the past few years there has been a political imperative driving the creation of European Reference Networks as these are considered a promising way to achieve equity in...