FAIR BENEFITS AND ITS CRITICS: WHO IS RIGHT?

Overview

Journal J Health Care Law Policy

Specialty Public Health

Date 2023 Oct 13

PMID 37829823

Authors

David Wendler

Seema K Shah

Affiliations

Soon will be listed here.

Citing Articles

Better recognition for research participants: what society should learn from covid-19.

Kraft S, Rohrig A, Williams A, Shah S BMJ. 2023; 380:e071178.

PMID: 36649969 PMC: 11200266. DOI: 10.1136/bmj-2022-071178.

References

Ballantyne A . 'Fair benefits' accounts of exploitation require a normative principle of fairness: response to Gbadegesin and Wendler, and Emanuel et al. Bioethics. 2008; 22(4):239-44. DOI: 10.1111/j.1467-8519.2007.00622.x. View

Emanuel E, Wendler D, Grady C . What makes clinical research ethical?. JAMA. 2000; 283(20):2701-11. DOI: 10.1001/jama.283.20.2701. View

Angell M . The ethics of clinical research in the Third World. N Engl J Med. 1997; 337(12):847-9. DOI: 10.1056/NEJM199709183371209. View

Schuklenk U . Calling it a day on proceduralism in bioethics?. Bioethics. 2010; 24(9):ii. DOI: 10.1111/j.1467-8519.2010.01863.x. View

London A . Justice and the human development approach to international research. Hastings Cent Rep. 2005; 35(1):24-37. View

Lavery J, Bandewar S, Kimani J, Upshur R, Plummer F, Singer P . 'Relief of oppression': an organizing principle for researchers' obligations to participants in observational studies in the developing world. BMC Public Health. 2010; 10:384. PMC: 3091550. DOI: 10.1186/1471-2458-10-384. View

Millum J . Sharing the benefits of research fairly: two approaches. J Med Ethics. 2011; 38(4):219-23. PMC: 4706167. DOI: 10.1136/medethics-2011-100118. View

Shah S, Wolitz R, Emanuel E . Refocusing the responsiveness requirement. Bioethics. 2011; 27(3):151-9. DOI: 10.1111/j.1467-8519.2011.01903.x. View

. Ethics. Fair benefits for research in developing countries. Science. 2002; 298(5601):2133-4. DOI: 10.1126/science.1076899. View

10.

Ballantyne A . HIV international clinical research: exploitation and risk. Bioethics. 2006; 19(5-6):476-91. DOI: 10.1111/j.1467-8519.2005.00459.x. View

11.

Nayak R, Shah S . Should Social Value Obligations be Local or Global?. Bioethics. 2017; 31(2):116-127. DOI: 10.1111/bioe.12322. View

12.

Brosnan S, de Waal F . Evolution of responses to (un)fairness. Science. 2014; 346(6207):1251776. PMC: 4451566. DOI: 10.1126/science.1251776. View

13.

Gbadegesin S, Wendler D . Protecting communities in health research from exploitation. Bioethics. 2006; 20(5):248-53. DOI: 10.1111/j.1467-8519.2006.00501.x. View

14.

Lurie P, Wolfe S . Unethical trials of interventions to reduce perinatal transmission of the human immunodeficiency virus in developing countries. N Engl J Med. 1997; 337(12):853-6. DOI: 10.1056/NEJM199709183371212. View

15.

London A, Zollman K . Research at the auction block: Problems for the fair benefits approach to international research. Hastings Cent Rep. 2010; 40(4):34-45. DOI: 10.1353/hcr.0.0281. View

16.

Varmus H, Satcher D . Ethical complexities of conducting research in developing countries. N Engl J Med. 1997; 337(14):1003-5. DOI: 10.1056/NEJM199710023371411. View

17.

Dal-Re R, Ndebele P, Higgs E, Sewankambo N, Wendler D . Protections for clinical trials in low and middle income countries need strengthening not weakening. BMJ. 2014; 349:g4254. PMC: 4688422. DOI: 10.1136/bmj.g4254. View

18.

Mandava A, Millum J . Manipulation in the enrollment of research participants. Hastings Cent Rep. 2013; 43(2):38-47. PMC: 4714752. DOI: 10.1002/hast.144. View

19.

Dawes C, Fowler J, Johnson T, McElreath R, Smirnov O . Egalitarian motives in humans. Nature. 2007; 446(7137):794-6. DOI: 10.1038/nature05651. View

20.

Wendler D, Shah S . Involving Communities in Deciding What Benefits They Receive in Multinational Research. J Med Philos. 2015; 40(5):584-600. PMC: 4573657. DOI: 10.1093/jmp/jhv017. View