6.
Mohd Ibrahim H, Muda Z, Othman I, Mohamed Unni M, Teh K, Thevarajah A
. Observational study on the current status of thalassaemia in Malaysia: a report from the Malaysian Thalassaemia Registry. BMJ Open. 2020; 10(6):e037974.
PMC: 7328811.
DOI: 10.1136/bmjopen-2020-037974.
View
7.
Viprakasit V, Ekwattanakit S
. Clinical Classification, Screening and Diagnosis for Thalassemia. Hematol Oncol Clin North Am. 2018; 32(2):193-211.
DOI: 10.1016/j.hoc.2017.11.006.
View
8.
Aydinok Y, Oymak Y, Atabay B, Aydogan G, Yesilipek A, Unal S
. A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention. Turk J Haematol. 2017; 35(1):12-18.
PMC: 5843769.
DOI: 10.4274/tjh.2017.0039.
View
9.
Thiyagarajan A, Bagavandas M, Kosalram K
. Assessing the role of family well-being on the quality of life of Indian children with thalassemia. BMC Pediatr. 2019; 19(1):100.
PMC: 6454746.
DOI: 10.1186/s12887-019-1466-y.
View
10.
Hossain M, Raheem E, Sultana T, Ferdous S, Nahar N, Islam S
. Thalassemias in South Asia: clinical lessons learnt from Bangladesh. Orphanet J Rare Dis. 2017; 12(1):93.
PMC: 5437604.
DOI: 10.1186/s13023-017-0643-z.
View
11.
Palanisamy B, Kosalram K, Gopichandran V
. Dimensions of social capital of families with thalassemia in an indigenous population in Tamil Nadu, India - a qualitative study. Int J Equity Health. 2017; 16(1):109.
PMC: 5483308.
DOI: 10.1186/s12939-017-0609-8.
View
12.
Sevinc S
. Life satisfaction and difficulties experienced by the family members of individuals with thalassemia. Nurs Open. 2023; 10(6):3914-3924.
PMC: 10170906.
DOI: 10.1002/nop2.1649.
View
13.
Boardman F, Hale R
. "I didn't take it too seriously because I'd just never heard of it": Experiential knowledge and genetic screening for thalassaemia in the UK. J Genet Couns. 2019; 28(1):141-154.
PMC: 7814888.
DOI: 10.1002/jgc4.1042.
View
14.
Hashim S, Sarwar M, Arsalan A, Awan I, Naseem S
. Frequency of carrier screening and preventive orientation among first degree relatives of Thalassaemia patients. J Pak Med Assoc. 2018; 68(1):50-54.
View
15.
Angastiniotis M, Petrou M, Loukopoulos D, Modell B, Farmakis D, Englezos P
. The Prevention of Thalassemia Revisited: A Historical and Ethical Perspective by the Thalassemia International Federation. Hemoglobin. 2021; 45(1):5-12.
DOI: 10.1080/03630269.2021.1872612.
View
16.
Taher A, Weatherall D, Cappellini M
. Thalassaemia. Lancet. 2017; 391(10116):155-167.
DOI: 10.1016/S0140-6736(17)31822-6.
View
17.
Chong L, Chong M, Tang L, Ramoo V, Chui P, Hmwe N
. The Relationship Between Psychological Distress and Religious Practices and Coping in Malaysian Parents of Children with Thalassemia. J Pediatr Nurs. 2019; 48:e15-e20.
DOI: 10.1016/j.pedn.2019.05.016.
View
18.
Diener E, Emmons R, Larsen R, Griffin S
. The Satisfaction With Life Scale. J Pers Assess. 1985; 49(1):71-5.
DOI: 10.1207/s15327752jpa4901_13.
View
19.
Souliotis K, Golna C, Nikolaidi S, Vatheia G, Hasurdjiev S
. Access to health care for patients with thalassaemia in Greece: a cross-sectional study. East Mediterr Health J. 2020; 26(12):1482-1492.
DOI: 10.26719/emhj.20.118.
View
20.
Wang Y, Huang Z, Kong F
. Parenting stress and life satisfaction in mothers of children with cerebral palsy: The mediating effect of social support. J Health Psychol. 2017; 25(3):416-425.
DOI: 10.1177/1359105317739100.
View