: A Qualitative Investigation of Adolescents' Coping Goals when Dealing with Pain Related to Arthritis and the Underlying Parent-adolescent Personal Models

Overview

Journal Paediatr Neonatal Pain

Specialty Pediatrics

Date 2022 Oct 3

PMID 36188161

Authors

Daniela Ghio

Rachel Calam

Rebecca Rachael Lee

Lis Cordingley

Fiona Ulph

Affiliations

Soon will be listed here.

Abstract

The aim of the current study was to examine adolescents' goals when coping with pain and map these goals to the cognitive and emotional profiles of both adolescent and their parent. 17 adolescents (11-16 years) and their parents participated in a cohort study of Juvenile Idiopathic Arthritis (JIA); the adolescents, took part in a two-part interview (about their pain perceptions and about a recent pain experience) and the parents completed an open-ended qualitative survey. The three datasets were analysed following a qualitative framework approach. A coping framework was developed and cognitive and emotional profiles for both adolescent and parent were mapped back to the framework. The overall goal of adolescents was to preserve social identity, by either focusing on a "normal" lifestyle (sub-coping goal one) or the pain (sub-coping goal two). Across these two sub-coping goals, the adolescents held similar cognitive profiles (beliefs about timeline, consequences, control) but different emotional profiles such as feeling fine/happy compared with feeling angry and frustrated. Conversely, the parents' cognitive and emotional profiles were mapped back to the two groups and found that their beliefs were different across the two sub-coping goals but had similar emotional profiles across the two groups such as worry. Both the adolescents' emotional representations and parental cognitive profiles seem to be related to how the adolescent perceives a pain event, deals with the pain, and the overall coping goal of the adolescent. Findings are suggestive that parental pain beliefs influence the adolescents' pain representations and their coping goals but are also driven by adolescents' emotions. Further work on these potential pathways is needed. Family interventions should be designed, targeting coping goals taking into consideration the importance of emotions for adolescents and parental pain beliefs.

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: A qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent-adolescent personal models.

Ghio D, Calam R, Lee R, Cordingley L, Ulph F Paediatr Neonatal Pain. 2022; 4(3):96-109.

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References

Suls J, Fletcher B . The relative efficacy of avoidant and nonavoidant coping strategies: a meta-analysis. Health Psychol. 1985; 4(3):249-88. DOI: 10.1037//0278-6133.4.3.249. View

Schmitz U, Saile H, Nilges P . Coping with chronic pain: flexible goal adjustment as an interactive buffer against pain-related distress. Pain. 1996; 67(1):41-51. DOI: 10.1016/0304-3959(96)03108-9. View

Nugent J, Ruperto N, Grainger J, Machado C, Sawhney S, Baildam E . The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001; 19(4 Suppl 23):S163-7. View

Calam R, Jimmieson P, Cox A, Glasgow D, Larsen S . Can computer-based assessment help us understand children's pain?. Eur J Anaesthesiol. 2000; 17(5):284-8. DOI: 10.1046/j.1365-2346.2000.00655.x. View

Ross C, Lavigne J, Hayford J, Berry S, Sinacore J, Pachman L . Psychological factors affecting reported pain in juvenile rheumatoid arthritis. J Pediatr Psychol. 1993; 18(5):561-73. DOI: 10.1093/jpepsy/18.5.561. View

Cohen L, Vowles K, Eccleston C . Parenting an adolescent with chronic pain: an investigation of how a taxonomy of adolescent functioning relates to parent distress. J Pediatr Psychol. 2009; 35(7):748-57. DOI: 10.1093/jpepsy/jsp103. View

Walker L, Zeman J . Parental response to child illness behavior. J Pediatr Psychol. 1992; 17(1):49-71. DOI: 10.1093/jpepsy/17.1.49. View

Raty L, Soderfeldt B, Larsson G, Larsson B . The relationship between illness severity, sociodemographic factors, general self-concept, and illness-specific attitude in Swedish adolescents with epilepsy. Seizure. 2004; 13(6):375-82. DOI: 10.1016/j.seizure.2003.09.011. View

Hyrich K, Lal S, Foster H, Thornton J, Adib N, Baildam E . Disease activity and disability in children with juvenile idiopathic arthritis one year following presentation to paediatric rheumatology. Results from the Childhood Arthritis Prospective Study. Rheumatology (Oxford). 2009; 49(1):116-22. PMC: 2789587. DOI: 10.1093/rheumatology/kep352. View

10.

Ghio D, Greenwell K, Muller I, Roberts A, McNiven A, Santer M . Psychosocial needs of adolescents and young adults with eczema: A secondary analysis of qualitative data to inform a behaviour change intervention. Br J Health Psychol. 2020; 26(1):214-231. DOI: 10.1111/bjhp.12467. View

11.

Palermo T, Eccleston C . Parents of children and adolescents with chronic pain. Pain. 2009; 146(1-2):15-7. PMC: 2760649. DOI: 10.1016/j.pain.2009.05.009. View

12.

Cartwright T, Fraser E, Edmunds S, Wilkinson N, Jacobs K . Journeys of adjustment: the experiences of adolescents living with juvenile idiopathic arthritis. Child Care Health Dev. 2014; 41(5):734-43. DOI: 10.1111/cch.12206. View

13.

Van Damme S, Crombez G, Eccleston C . Coping with pain: a motivational perspective. Pain. 2008; 139(1):1-4. DOI: 10.1016/j.pain.2008.07.022. View

14.

Luyckx K, Rassart J, Aujoulat I, Goubert L, Weets I . Self-esteem and illness self-concept in emerging adults with Type 1 diabetes: Long-term associations with problem areas in diabetes. J Health Psychol. 2014; 21(4):540-9. DOI: 10.1177/1359105314531467. View

15.

Guite J, Logan D, Sherry D, Rose J . Adolescent self-perception: associations with chronic musculoskeletal pain and functional disability. J Pain. 2007; 8(5):379-86. DOI: 10.1016/j.jpain.2006.10.006. View

16.

Kimura Y, Walco G . Pain in children with rheumatic diseases. Curr Rheumatol Rep. 2006; 8(6):480-8. DOI: 10.1007/s11926-006-0045-z. View

17.

Ghio D, Calam R, Lee R, Cordingley L, Ulph F . : A qualitative investigation of adolescents' coping goals when dealing with pain related to arthritis and the underlying parent-adolescent personal models. Paediatr Neonatal Pain. 2022; 4(3):96-109. PMC: 9485820. DOI: 10.1002/pne2.12069. View

18.

Palermo T, Chambers C . Parent and family factors in pediatric chronic pain and disability: an integrative approach. Pain. 2005; 119(1-3):1-4. DOI: 10.1016/j.pain.2005.10.027. View

19.

Connelly M, Anthony K, Schanberg L . Parent perceptions of child vulnerability are associated with functioning and health care use in children with chronic pain. J Pain Symptom Manage. 2012; 43(5):953-60. PMC: 4104198. DOI: 10.1016/j.jpainsymman.2011.05.009. View

20.

Tong A, Jones J, Craig J, Singh-Grewal D . Children's experiences of living with juvenile idiopathic arthritis: a thematic synthesis of qualitative studies. Arthritis Care Res (Hoboken). 2012; 64(9):1392-404. DOI: 10.1002/acr.21695. View