Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy

Overview

Journal Front Public Health

Specialty Public Health

Date 2022 Jun 1

PMID 35646791

Authors

Marieke van der Gaag

Monique Heijmans

Marta Ballester

Carola Orrego

Ena Nino de Guzman

Lyudmil Ninov

Jany Rademakers

Affiliations

Soon will be listed here.

Abstract

Background: For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and preferences of patients. Therefore, this study explores the preferences regarding self-management outcomes of chronically ill patients with limited health literacy.

Methods: A total of 35 patients with limited health literacy were invited to a concept-mapping procedure consisting of two card sorting tasks. Patients ranked 60 outcomes, which are often found in literature in relation to self-management, to the level that was important for themselves. Means were calculated for each outcome and domain, and differences within the group were analyzed.

Results: For patients with limited health literacy, satisfaction with care is the most important outcome domain. This domain includes overall satisfaction, the communication with health care providers, the provision of information and trust. At an outcome level, outcomes related to symptom management and improving competences to self-management scored very high. No differences between patient groups for age and sex were found.

Conclusion: Chronically ill patients with limited health literacy prefer a wide variety of outcomes for their self-management. Next to health related outcomes, patients mostly prefer to work on their competences for self-management. For health care professionals, acting on these patient preferences and building a solid relationship will enhance successful self-management.

Citing Articles

Associations of Mental Health Issues with Health Literacy and Vaccination Readiness against COVID-19 in Long-Term Care Facilities-A Cross-Sectional Analysis.

Sanftenberg L, Gschwendner M, Grass A, Rottenkolber M, Zollinger I, Sebastiao M Eur J Investig Health Psychol Educ. 2024; 14(3):432-446.

PMID: 38534890 PMC: 10969694. DOI: 10.3390/ejihpe14030029.

References

Kool M, Geenen R, Egberts M, Wanders H, Van Loey N . Patients' perspectives on quality of life after burn. Burns. 2017; 43(4):747-756. DOI: 10.1016/j.burns.2016.11.016. View

Ruiz S, Brady T, Glasgow R, Birkel R, Spafford M . Chronic condition self-management surveillance: what is and what should be measured?. Prev Chronic Dis. 2014; 11:E103. PMC: 4068112. DOI: 10.5888/pcd11.130328. View

Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J . Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002; 48(2):177-87. DOI: 10.1016/s0738-3991(02)00032-0. View

Abdullah A, Liew S, Salim H, Jenn Ng C, Chinna K . Prevalence of limited health literacy among patients with type 2 diabetes mellitus: A systematic review. PLoS One. 2019; 14(5):e0216402. PMC: 6504081. DOI: 10.1371/journal.pone.0216402. View

Ammerlaan J, van Os-Medendorp H, de Boer-Nijhof N, Maat B, Scholtus L, Kruize A . Preferences and needs of patients with a rheumatic disease regarding the structure and content of online self-management support. Patient Educ Couns. 2016; 100(3):501-508. DOI: 10.1016/j.pec.2016.10.009. View

Bayliss E, Ellis J, Steiner J . Barriers to self-management and quality-of-life outcomes in seniors with multimorbidities. Ann Fam Med. 2007; 5(5):395-402. PMC: 2000313. DOI: 10.1370/afm.722. View

Sorensen K, Maindal H, Heijmans M, Rademakers J . Work in Progress: A Report on Health Literacy in Denmark and the Netherlands. Stud Health Technol Inform. 2020; 269:202-211. DOI: 10.3233/SHTI200033. View

Song M, Lee M, Shim B . Barriers to and facilitators of self-management adherence in Korean older adults with type 2 diabetes. Int J Older People Nurs. 2010; 5(3):211-8. DOI: 10.1111/j.1748-3743.2009.00189.x. View

Burke J, OCampo P, Peak G, Gielen A, McDonnell K, Trochim W . An introduction to concept mapping as a participatory public health research method. Qual Health Res. 2005; 15(10):1392-410. DOI: 10.1177/1049732305278876. View

10.

McKenna V, Sixsmith J, Barry M . Facilitators and Barriers to the Development of Health Literacy Capacities Over Time for Self-Management. Health Lit Res Pract. 2020; 4(2):e104-e118. PMC: 7213021. DOI: 10.3928/24748307-20200221-01. View

11.

Trappenburg J, Jonkman N, Jaarsma T, van Os-Medendorp H, Kort H, de Wit N . Self-management: one size does not fit all. Patient Educ Couns. 2013; 92(1):134-7. DOI: 10.1016/j.pec.2013.02.009. View

12.

Moller M . Patient-important outcomes and core outcome sets: increased attention needed!. Br J Anaesth. 2019; 122(4):408-410. PMC: 6435936. DOI: 10.1016/j.bja.2019.02.007. View

13.

Puente-Maestu L, Calle M, Rodriguez-Hermosa J, Campuzano A, de Miguel Diez J, Alvarez-Sala J . Health literacy and health outcomes in chronic obstructive pulmonary disease. Respir Med. 2016; 115:78-82. DOI: 10.1016/j.rmed.2016.04.016. View

14.

van Houtum L, Rijken M, Heijmans M, Groenewegen P . Patient-perceived self-management tasks and support needs of people with chronic illness: generic or disease specific?. Ann Behav Med. 2014; 49(2):221-9. DOI: 10.1007/s12160-014-9649-0. View

15.

Whatnall M, Patterson A, Ashton L, Hutchesson M . Effectiveness of brief nutrition interventions on dietary behaviours in adults: A systematic review. Appetite. 2017; 120:335-347. DOI: 10.1016/j.appet.2017.09.017. View

16.

Chew L, Bradley K, Boyko E . Brief questions to identify patients with inadequate health literacy. Fam Med. 2004; 36(8):588-94. View

17.

Berkman N, Sheridan S, Donahue K, Halpern D, Crotty K . Low health literacy and health outcomes: an updated systematic review. Ann Intern Med. 2011; 155(2):97-107. DOI: 10.7326/0003-4819-155-2-201107190-00005. View

18.

Morris N, MacLean C, Chew L, Littenberg B . The Single Item Literacy Screener: evaluation of a brief instrument to identify limited reading ability. BMC Fam Pract. 2006; 7:21. PMC: 1435902. DOI: 10.1186/1471-2296-7-21. View

19.

Benbassat J, Pilpel D, Tidhar M . Patients' preferences for participation in clinical decision making: a review of published surveys. Behav Med. 1998; 24(2):81-8. DOI: 10.1080/08964289809596384. View

20.

Fix G, Cohn E, Solomon J, Cortes D, Mueller N, Kressin N . The role of comorbidities in patients' hypertension self-management. Chronic Illn. 2013; 10(2):81-92. PMC: 8887829. DOI: 10.1177/1742395313496591. View