Internal and External Aspects of Freedom of Choice in Mental Health: Cultural and Linguistic Adaptation of the Hungarian Version of the Oxford CAPabilities Questionnaire-Mental Health (OxCAP-MH)

Overview

Journal BMC Psychol

Publisher Biomed Central

Specialty Psychology

Date 2021 Oct 19

PMID 34663472

Citations 2

Authors

Timea Mariann Helter

Ildiko Kovacs

Andor Kanka

Orsolya Varga

Janos Kalman

Judit Simon

Affiliations

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Abstract

Background: A link between mental health and freedom of choice has long been established, in fact, the loss of freedom of choice is one of the possible defining features of mental disorders. Freedom of choice has internal and external aspects explicitly identified within the capability approach, but received little explicit attention in capability instruments. This study aimed to develop a feasible and linguistically and culturally appropriate Hungarian version of the Oxford CAPabilities questionnaire-Mental Health (OxCAP-MH) for mental health outcome measurement.

Methods: Following forward and back translations, a reconciled Hungarian version of the OxCAP-MH was developed following professional consensus guidelines of the International Society for Pharmacoeconomics and Outcomes Research and the WHO. The wording of the questionnaire underwent cultural and linguistic validation through content analysis of cognitive debriefing interviews with 11 Hungarian speaking mental health patients in 2019. Results were compared with those from the development of the German version and the original English version with special focus on linguistic aspects.

Results: Twenty-nine phrases were translated. There were linguistic differences in each question and answer options due to the high number of inflected, affixed words and word fragments that characterize the Hungarian language in general. Major linguistic differences were also revealed between the internal and external aspects of capability freedom of choices which appear much more explicit in the Hungarian than in the English or German languages. A re-analysis of the capability freedom of choice concepts in the existing language versions exposed the need for minor amendments also in the English version in order to allow the development of future culturally, linguistically and conceptually valid translations.

Conclusion: The internal and external freedom of choice impacts of mental health conditions require different care/policy measures. Their explicit consideration is necessary for the conceptually harmonised operationalisation of the capability approach for (mental) health outcome measurement in diverse cultural and linguistic contexts.

Citing Articles

Population normative data for OxCAP-MH capability scores.

Balazs P, Laszewska A, Simon J, Brodszky V Eur J Health Econ. 2024; 26(2):223-231.

PMID: 38789619 PMC: 11889034. DOI: 10.1007/s10198-024-01696-w.

Does the relative importance of the OxCAP-MH's capability items differ according to mental ill-health experience?.

Helter T, Kaltenboeck A, Baumgartner J, Mayrhofer F, Heinze G, Sonnichsen A Health Qual Life Outcomes. 2022; 20(1):99.

PMID: 35751092 PMC: 9233329. DOI: 10.1186/s12955-022-02009-6.

References

Helter T, Coast J, Laszewska A, Stamm T, Simon J . Capability instruments in economic evaluations of health-related interventions: a comparative review of the literature. Qual Life Res. 2019; 29(6):1433-1464. PMC: 7253529. DOI: 10.1007/s11136-019-02393-5. View

Tsang S, Royse C, Terkawi A . Guidelines for developing, translating, and validating a questionnaire in perioperative and pain medicine. Saudi J Anaesth. 2017; 11(Suppl 1):S80-S89. PMC: 5463570. DOI: 10.4103/sja.SJA_203_17. View

Simon J, Anand P, Gray A, Rugkasa J, Yeeles K, Burns T . Operationalising the capability approach for outcome measurement in mental health research. Soc Sci Med. 2013; 98:187-96. DOI: 10.1016/j.socscimed.2013.09.019. View

Lau S, Hiemisch A . Functional Freedom: A Psychological Model of Freedom in Decision-Making. Behav Sci (Basel). 2017; 7(3). PMC: 5618049. DOI: 10.3390/bs7030041. View

Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A . Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health. 2005; 8(2):94-104. DOI: 10.1111/j.1524-4733.2005.04054.x. View

Mitchell P, Roberts T, Barton P, Coast J . Applications of the Capability Approach in the Health Field: A Literature Review. Soc Indic Res. 2017; 133(1):345-371. PMC: 5511308. DOI: 10.1007/s11205-016-1356-8. View

Mitchell P, Al-Janabi H, Byford S, Kuyken W, Richardson J, Iezzi A . Assessing the validity of the ICECAP-A capability measure for adults with depression. BMC Psychiatry. 2017; 17(1):46. PMC: 5289054. DOI: 10.1186/s12888-017-1211-8. View

Meynen G . Free will and mental disorder: exploring the relationship. Theor Med Bioeth. 2010; 31(6):429-43. PMC: 2975916. DOI: 10.1007/s11017-010-9158-5. View

Proud L, McLoughlin C, Kinghorn P . ICECAP-O, the current state of play: a systematic review of studies reporting the psychometric properties and use of the instrument over the decade since its publication. Qual Life Res. 2019; 28(6):1429-1439. PMC: 6522451. DOI: 10.1007/s11136-019-02114-y. View

10.

Vergunst F, Jenkinson C, Burns T, Anand P, Gray A, Rugkasa J . Psychometric validation of a multi-dimensional capability instrument for outcome measurement in mental health research (OxCAP-MH). Health Qual Life Outcomes. 2017; 15(1):250. PMC: 5745777. DOI: 10.1186/s12955-017-0825-3. View

11.

Rihmer Z, Gonda X, Kapitany B, Dome P . Suicide in Hungary-epidemiological and clinical perspectives. Ann Gen Psychiatry. 2013; 12(1):21. PMC: 3698008. DOI: 10.1186/1744-859X-12-21. View

12.

Zonda T, Bozsonyi K, Veres E . Seasonal fluctuation of suicide in Hungary between 1970-2000. Arch Suicide Res. 2005; 9(1):77-85. DOI: 10.1080/13811110590512967. View

13.

Al-Janabi H, Flynn T, Coast J . Development of a self-report measure of capability wellbeing for adults: the ICECAP-A. Qual Life Res. 2011; 21(1):167-76. PMC: 3254872. DOI: 10.1007/s11136-011-9927-2. View

14.

Laszewska A, Schwab M, Leutner E, Oberrauter M, Spiel G, Simon J . Measuring broader wellbeing in mental health services: validity of the German language OxCAP-MH capability instrument. Qual Life Res. 2019; 28(8):2311-2323. PMC: 6620251. DOI: 10.1007/s11136-019-02187-9. View

15.

Krupchanka D, Winkler P . State of mental healthcare systems in Eastern Europe: do we really understand what is going on?. BJPsych Int. 2017; 13(4):96-99. PMC: 5619493. DOI: 10.1192/s2056474000001446. View

16.

Berecz R, Caceres M, Szlivka A, Dorado P, Bartok E, Penas-Lledo E . Reduced completed suicide rate in Hungary from 1990 to 2001: relation to suicide methods. J Affect Disord. 2005; 88(2):235-8. DOI: 10.1016/j.jad.2005.07.005. View

17.

Laszewska A, Osterle A, Wancata J, Simon J . Prevalence of mental diseases in Austria : Systematic review of the published evidence. Wien Klin Wochenschr. 2018; 130(3-4):141-150. PMC: 5816100. DOI: 10.1007/s00508-018-1316-1. View

18.

Baumgardt J, Daum M, von dem Knesebeck O, Speck A, Roh D . [Assess Capabilities Among Chronically Mentally Ill People: First Test Results on a Draft German Version of the OxCAP-MH as Part of the BAESCAP Study]. Psychiatr Prax. 2017; 45(3):140-147. DOI: 10.1055/s-0043-101903. View

19.

Simon J, Laszewska A, Leutner E, Spiel G, Churchman D, Mayer S . Cultural and linguistic transferability of the multi-dimensional OxCAP-MH capability instrument for outcome measurement in mental health: the German language version. BMC Psychiatry. 2018; 18(1):173. PMC: 5987381. DOI: 10.1186/s12888-018-1762-3. View