Provider Preferences for Patient-Generated Health Data Displays in Pediatric Asthma: A Participatory Design Approach

Overview

Journal Appl Clin Inform

Publisher Thieme

Specialties Health Services
Medical Informatics

Date 2021 Jul 21

PMID 34289505

Citations 4

Authors

Victoria L Tiase

Sarah E Wawrzynski

Katherine A Sward

Guilherme Del Fiol

Catherine Staes

Charlene Weir

Mollie R Cummins

Affiliations

Soon will be listed here.

Abstract

Objective: There is a lack of evidence on how to best integrate patient-generated health data (PGHD) into electronic health record (EHR) systems in a way that supports provider needs, preferences, and workflows. The purpose of this study was to investigate provider preferences for the graphical display of pediatric asthma PGHD to support decisions and information needs in the outpatient setting.

Methods: In December 2019, we conducted a formative evaluation of information display prototypes using an iterative, participatory design process. Using multiple types of PGHD, we created two case-based vignettes for pediatric asthma and designed accompanying displays to support treatment decisions. Semi-structured interviews and questionnaires with six participants were used to evaluate the display usability and determine provider preferences.

Results: We identified provider preferences for display features, such as the use of color to indicate different levels of abnormality, the use of patterns to trend PGHD over time, and the display of environmental data. Preferences for display content included the amount of information and the relationship between data elements.

Conclusion: Overall, provider preferences for PGHD include a desire for greater detail, additional sources, and visual integration with relevant EHR data. In the design of PGHD displays, it appears that the visual synthesis of multiple PGHD elements facilitates the interpretation of the PGHD. Clinicians likely need more information to make treatment decisions when PGHD displays are introduced into practice. Future work should include the development of interactive interface displays with full integration of PGHD into EHR systems.

Citing Articles

A Practical Guide to Participatory Design Sessions for the Development of Information Visualizations: Tutorial.

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Improving the design of patient-generated health data visualizations: design considerations from a Fitbit sleep study.

Tsai C, Rajput G, Gao A, Wu Y, Wu D J Am Med Inform Assoc. 2023; 31(2):465-471.

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Information and Data Visualization Needs among Direct Care Nurses in the Intensive Care Unit.

Lindroth H, Pinevich Y, Barwise A, Fathma S, Diedrich D, Pickering B Appl Clin Inform. 2022; 13(5):1207-1213.

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Improving Asthma Care Documentation with a Digital Tool-Experience in a Pediatric Institution.

de Groot S, Lawrence J, Liddle J, Campbell J, Cheng D Appl Clin Inform. 2022; 13(4):956-960.

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