Safeguarding Children and Young People Requiring Kidney Replacement Therapy: Challenges and Potential Opportunities

Overview

Journal Pediatr Nephrol

Specialties Nephrology
Pediatrics

Date 2021 Jul 11

PMID 34247294

Citations 1

Authors

Hannah Jacob

Matko Marlais

Affiliations

Soon will be listed here.

Abstract

Kidney replacement therapy (KRT) makes considerable physical and psychological demands on children, young people and their families. The impact can be wide-ranging, affecting education, employment, mental health, finances and relationships for both child and caregiver. It is vitally important for those working with these families to recognise the psychosocial challenges they face and to know the range of interventions available. This article explores the psychosocial impact of KRT, considering opportunities to minimise risk and optimise outcomes for children, young people and their families.

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PMID: 38963554 DOI: 10.1007/s00467-024-06445-y.

References

Wildeman C, Emanuel N, Leventhal J, Putnam-Hornstein E, Waldfogel J, Lee H . The prevalence of confirmed maltreatment among US children, 2004 to 2011. JAMA Pediatr. 2014; 168(8):706-13. PMC: 5087599. DOI: 10.1001/jamapediatrics.2014.410. View

Chen K, Didsbury M, van Zwieten A, Howell M, Kim S, Tong A . Neurocognitive and Educational Outcomes in Children and Adolescents with CKD: A Systematic Review and Meta-Analysis. Clin J Am Soc Nephrol. 2018; 13(3):387-397. PMC: 5967677. DOI: 10.2215/CJN.09650917. View

Tjaden L, Maurice-Stam H, Grootenhuis M, Jager K, Groothoff J . Impact of Renal Replacement Therapy in Childhood on Long-Term Socioprofessional Outcomes: A 30-year Follow-Up Study. J Pediatr. 2016; 171:189-95.e1-2. DOI: 10.1016/j.jpeds.2015.12.017. View

Mellerio H, Alberti C, Labeguerie M, Andriss B, Savoye E, Lassalle M . Adult social and professional outcomes of pediatric renal transplant recipients. Transplantation. 2013; 97(2):196-205. DOI: 10.1097/TP.0b013e3182a74de2. View

Tjaden L, Vogelzang J, Jager K, van Stralen K, Maurice-Stam H, Grootenhuis M . Long-term quality of life and social outcome of childhood end-stage renal disease. J Pediatr. 2014; 165(2):336-342.e1. DOI: 10.1016/j.jpeds.2014.04.013. View

Hothi D, Stronach L, Harvey E . Home haemodialysis. Pediatr Nephrol. 2012; 28(5):721-30. DOI: 10.1007/s00467-012-2322-6. View

Kilis-Pstrusinska K, Wasilewska A, Medynska A, Balasz-Chmielewska I, Grenda R, Kluska-Jozwiak A . Psychosocial aspects of children and families of children treated with automated peritoneal dialysis. Pediatr Nephrol. 2013; 28(11):2157-67. PMC: 3824203. DOI: 10.1007/s00467-013-2532-6. View

Bello A, Sangweni B, Mudi A, Khumalo T, Moonsamy G, Levy C . The Financial Cost Incurred by Families of Children on Long-Term Dialysis. Perit Dial Int. 2018; 38(1):14-17. DOI: 10.3747/pdi.2017.00092. View

Tong A, Lowe A, Sainsbury P, Craig J . Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies. Pediatrics. 2008; 121(2):349-60. DOI: 10.1542/peds.2006-3470. View

10.

Kim H, Drake B, Jonson-Reid M . Longitudinal Understanding of Child Maltreatment Report Risks. Child Abuse Negl. 2020; 104:104467. PMC: 8323119. DOI: 10.1016/j.chiabu.2020.104467. View

11.

Tong A, Henning P, Wong G, McTaggart S, Mackie F, Carroll R . Experiences and perspectives of adolescents and young adults with advanced CKD. Am J Kidney Dis. 2013; 61(3):375-84. DOI: 10.1053/j.ajkd.2012.09.024. View

12.

Rodriguez Cuellar C, Garcia de la Puente S, Hernandez Moraria J, Bojorquez Ochoa A, Filler G, Zaltzman Grishevich S . High depression rates among pediatric renal replacement therapy patients: A cross-sectional study. Pediatr Transplant. 2019; 23(8):e13591. DOI: 10.1111/petr.13591. View

13.

Thys K, Schwering K, Siebelink M, Dobbels F, Borry P, Schotsmans P . Psychosocial impact of pediatric living-donor kidney and liver transplantation on recipients, donors, and the family: a systematic review. Transpl Int. 2014; 28(3):270-80. DOI: 10.1111/tri.12481. View

14.

Enden K, Tainio J, Jalanko H, Jahnukainen K, Jahnukainen T . Lower quality of life in young men after pediatric kidney transplantation when compared to healthy controls and survivors of childhood leukemia-a cross-sectional study. Transpl Int. 2017; 31(2):157-164. DOI: 10.1111/tri.13040. View

15.

Turner H, Vanderminden J, Finkelhor D, Hamby S, Shattuck A . Disability and victimization in a national sample of children and youth. Child Maltreat. 2011; 16(4):275-86. DOI: 10.1177/1077559511427178. View

16.

Diseth T, Tangeraas T, Reinfjell T, Bjerre A . Kidney transplantation in childhood: mental health and quality of life of children and caregivers. Pediatr Nephrol. 2011; 26(10):1881-92. PMC: 3163767. DOI: 10.1007/s00467-011-1887-9. View

17.

Gomes C, Oliveira L, Ferreira R, Simao C . Sleep disturbance in pediatric patients on automated peritoneal dialysis. Sleep Med. 2017; 32:87-91. DOI: 10.1016/j.sleep.2016.12.010. View

18.

Geary D, Piva E, Tyrrell J, Gajaria M, Picone G, Keating L . Home nocturnal hemodialysis in children. J Pediatr. 2005; 147(3):383-7. DOI: 10.1016/j.jpeds.2005.04.034. View

19.

Liel C, Ulrich S, Lorenz S, Eickhorst A, Fluke J, Walper S . Risk factors for child abuse, neglect and exposure to intimate partner violence in early childhood: Findings in a representative cross-sectional sample in Germany. Child Abuse Negl. 2020; 106:104487. DOI: 10.1016/j.chiabu.2020.104487. View

20.

Ashoor I, Aviles D, Pasternak R, Vehaskari V . Sexually transmitted infections in pediatric renal transplant recipients: Time to take notice!. Pediatr Transplant. 2015; 19(6):584-7. DOI: 10.1111/petr.12554. View