Managing an Altered Social Context-Patients Experiences of Staying Away from Home While Undergoing Proton Beam Therapy

Overview

Journal Nurs Open

Specialty Nursing

Date 2020 Jun 27

PMID 32587735

Citations 3

Authors

Marie-Louise Mollerberg

Ulrica Langegard

Emma Ohlsson-Nevo

Per Fransson

Birgitta Johansson

Karin Ahlberg

Katarina Sjovall

Affiliations

Soon will be listed here.

Abstract

Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy.

Design: A descriptive, qualitative cross-sectional interview study.

Methods: Nineteen patients were interviewed between December 2015-August 2016, either during ( = 7) or before and after ( = 12) their proton beam therapy. A hermeneutical analysis was performed.

Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity.

Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.

Citing Articles

To become part of the team-patient experiences of participating in decision-making for a new treatment (proton beam therapy).

Sjovall K, Ahlberg K, Fesse P, Fransson P, Kristensen I, Ohlsson-Nevo E Support Care Cancer. 2024; 32(7):442.

PMID: 38890189 PMC: 11189341. DOI: 10.1007/s00520-024-08631-y.

Evaluating patient reported outcomes and experiences in a novel proton beam clinic - challenges, activities, and outcomes of the ProtonCare project.

Sjovall K, Langegard U, Fransson P, Nevo-Ohlsson E, Kristensen I, Ahlberg K BMC Cancer. 2023; 23(1):132.

PMID: 36759789 PMC: 9909877. DOI: 10.1186/s12885-023-10586-y.

Managing an altered social context-Patients experiences of staying away from home while undergoing proton beam therapy.

Mollerberg M, Langegard U, Ohlsson-Nevo E, Fransson P, Johansson B, Ahlberg K Nurs Open. 2020; 7(4):1157-1163.

PMID: 32587735 PMC: 7308677. DOI: 10.1002/nop2.490.

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