When Kidney Transplantation is Not an Option: Haemodialysis Patients' and Partners' Experiences-A Qualitative Study

Overview

Journal Nurs Open

Specialty Nursing

Date 2020 Jun 27

PMID 32587730

Citations 1

Authors

Christina Egmose Frandsen

Erik Bo Pedersen

Hanne Agerskov

Affiliations

Soon will be listed here.

Abstract

Aim: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners.

Design: A qualitative exploratory study with a phenomenological-hermeneutic approach.

Method: Data were collected through individual interviews. In total, five patients in haemodialysis and their partners were included in the study. Data were analysed with inspiration from Ricoeur's theory around narratives and interpretation on three levels: naïve reading, structural analysis and critical interpretation and discussion. Data was collected between February 2018-June 2019.

Results: Limitations caused by the disease and time-consuming treatment influenced daily life. In particular, the partners needed to have time on their own. Knowledge about the disease and participation in treatment were significant to both patients and partners. There were considerations about illness progression. Relationships to their social networks and healthcare professionals were a significant and important part of daily life for both parties.

Citing Articles

When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences-A qualitative study.

Frandsen C, Pedersen E, Agerskov H Nurs Open. 2020; 7(4):1110-1117.

PMID: 32587730 PMC: 7308691. DOI: 10.1002/nop2.487.

References

Liyanage T, Ninomiya T, Jha V, Neal B, Patrice H, Okpechi I . Worldwide access to treatment for end-stage kidney disease: a systematic review. Lancet. 2015; 385(9981):1975-82. DOI: 10.1016/S0140-6736(14)61601-9. View

Mashayekhi F, Pilevarzadeh M, Rafati F . THE ASSESSMENT OF CAREGIVER BURDEN IN CAREGIVERS OF HEMODIALYSIS PATIENTS. Mater Sociomed. 2015; 27(5):333-6. PMC: 4639350. DOI: 10.5455/msm.2015.27.333-336. View

Ziegert K, Fridlund B, Lidell E . Professional support for next of kin of patients receiving chronic haemodialysis treatment: a content analysis study of nursing documentation. J Clin Nurs. 2007; 16(2):353-61. DOI: 10.1111/j.1365-2702.2006.01597.x. View

Northouse L, Katapodi M, Song L, Zhang L, Mood D . Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA Cancer J Clin. 2010; 60(5):317-39. PMC: 2946584. DOI: 10.3322/caac.20081. View

Frandsen C, Pedersen E, Agerskov H . When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences-A qualitative study. Nurs Open. 2020; 7(4):1110-1117. PMC: 7308691. DOI: 10.1002/nop2.487. View

Kang X, Li Z, Nolan M . Informal caregivers' experiences of caring for patients with chronic heart failure: systematic review and metasynthesis of qualitative studies. J Cardiovasc Nurs. 2011; 26(5):386-94. PMC: 8976444. DOI: 10.1097/JCN.0b013e3182076a69. View

Terasaki P, Cecka J, Gjertson D, Takemoto S . High survival rates of kidney transplants from spousal and living unrelated donors. N Engl J Med. 1995; 333(6):333-6. DOI: 10.1056/NEJM199508103330601. View

Hagren B, Pettersen I, Severinsson E, Lutzen K, Clyne N . The haemodialysis machine as a lifeline: experiences of suffering from end-stage renal disease. J Adv Nurs. 2001; 34(2):196-202. DOI: 10.1046/j.1365-2648.2001.01745.x. View

Wolfe R, Ashby V, Milford E, Ojo A, Ettenger R, Agodoa L . Comparison of mortality in all patients on dialysis, patients on dialysis awaiting transplantation, and recipients of a first cadaveric transplant. N Engl J Med. 1999; 341(23):1725-30. DOI: 10.1056/NEJM199912023412303. View

10.

Clarkson K, Robinson K . Life on dialysis: a lived experience. Nephrol Nurs J. 2010; 37(1):29-35. View

11.

Sohi P . Sources of uncertainty and coping strategies used by family members of individuals living with end stage renal disease. Nephrol Nurs J. 2002; 28(4):411-7, 419; discussion 418-9. View

12.

Tong A, Sainsbury P, Craig J . Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6):349-57. DOI: 10.1093/intqhc/mzm042. View

13.

Dalteg T, Benzein E, Fridlund B, Malm D . Cardiac disease and its consequences on the partner relationship: a systematic review. Eur J Cardiovasc Nurs. 2011; 10(3):140-9. DOI: 10.1016/j.ejcnurse.2011.01.006. View

14.

Hagren B, Pettersen I, Severinsson E, Lutzen K, Clyne N . Maintenance haemodialysis: patients' experiences of their life situation. J Clin Nurs. 2005; 14(3):294-300. DOI: 10.1111/j.1365-2702.2004.01036.x. View

15.

Kurella Tamura M, Yaffe K, Hsu C, Yang J, Sozio S, Fischer M . Cognitive Impairment and Progression of CKD. Am J Kidney Dis. 2016; 68(1):77-83. PMC: 4921255. DOI: 10.1053/j.ajkd.2016.01.026. View

16.

Aasen E, Kvangarsnes M, Wold B, Heggen K . The next of kin of older people undergoing haemodialysis: a discursive perspective on perceptions of participation. J Adv Nurs. 2011; 68(8):1716-25. DOI: 10.1111/j.1365-2648.2011.05854.x. View

17.

White Y, Grenyer B . The biopsychosocial impact of end-stage renal disease: the experience of dialysis patients and their partners. J Adv Nurs. 1999; 30(6):1312-20. DOI: 10.1046/j.1365-2648.1999.01236.x. View

18.

Cruz J, Marques A, Figueiredo D . Impacts of COPD on family carers and supportive interventions: a narrative review. Health Soc Care Community. 2015; 25(1):11-25. DOI: 10.1111/hsc.12292. View