Alpha 2.0
Login Register
» Articles » PMID: 30617201

In Response to Ballantyne and Schaefer's 'Consent and the Ethical Duty to Participate in Health Data Research'

Overview
Journal J Med Ethics
Publisher BMJ Publishing Group
Specialty Medical Ethics
Date 2019 Jan 9
PMID 30617201
Citations 1
Authors
Nilay Hepgul
Katherine E Sleeman
Alice M Firth
Anna Johnston
James T H Teo
William Bernal
Richard J B Dobson
Irene J Higginson
Affiliations
Soon will be listed here.
Abstract

We welcome Ballantyne & Schaefer's discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.

Citing Articles

Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review.

Cumyn A, Menard J, Barton A, Dault R, Levesque F, Ethier J J Med Internet Res. 2023; 25:e45002.

PMID: 37052967 PMC: 10141314. DOI: 10.2196/45002.

References
1.
Robling M, Hood K, Houston H, Pill R, Fay J, Evans H . Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study. J Med Ethics. 2004; 30(1):104-9. PMC: 1757117. DOI: 10.1136/jme.2003.005157. View
2.
Cheah S, ODonoghue S, Daudt H, Dee S, LeBlanc J, Braun L . Permission to contact (PTC)--a strategy to enhance patient engagement in translational research. Biopreserv Biobank. 2014; 11(4):245-52. DOI: 10.1089/bio.2013.0023. View
3.
Ballantyne A, Schaefer G . Consent and the ethical duty to participate in health data research. J Med Ethics. 2018; 44(6):392-396. DOI: 10.1136/medethics-2017-104550. View
4.
Jackson R, Kartoglu I, Stringer C, Gorrell G, Roberts A, Song X . CogStack - experiences of deploying integrated information retrieval and extraction services in a large National Health Service Foundation Trust hospital. BMC Med Inform Decis Mak. 2018; 18(1):47. PMC: 6020175. DOI: 10.1186/s12911-018-0623-9. View
5.
Willison D, Keshavjee K, Nair K, Goldsmith C, Holbrook A . Patients' consent preferences for research uses of information in electronic medical records: interview and survey data. BMJ. 2003; 326(7385):373. PMC: 148897. DOI: 10.1136/bmj.326.7385.373. View