» Articles » PMID: 30255404

The Role of PAEHRs in Patient Involvement

Overview
Journal J Med Syst
Date 2018 Sep 27
PMID 30255404
Citations 8
Authors
Affiliations
Soon will be listed here.
Abstract

With increased patient access to data, healthcare services are experiencing change where patients are moving away from being mere passive actors towards becoming more active and involved participants. In this paper, we explore the role of patient accessible electronic health records (PAEHRs) with respect to this increase in patient involvement. The study was performed as a case study and included nine interviews with patients and a survey that was responded to by 56 patients. Our results show that PAEHRs have a role in the enhancement of patient involvement because PAEHRs (i) foster a more balanced relationship between patients and healthcare professionals and (ii) increase access to information.

Citing Articles

Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden.

Fagerlund A, Barkas A, Kharko A, Blease C, Hagstrom J, Huvila I BMC Psychiatry. 2024; 24(1):481.

PMID: 38956493 PMC: 11220963. DOI: 10.1186/s12888-024-05916-8.


The Implementation of Federated Digital Identifiers in Health Care: Rapid Review.

Ramamoorthi K, Stamenova V, Liu R, Bhattacharyya O J Med Internet Res. 2024; 26:e45751.

PMID: 38329799 PMC: 10884916. DOI: 10.2196/45751.


Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey.

Moll J, Myreteg G, Rexhepi H JMIR Ment Health. 2024; 11:e48008.

PMID: 38306158 PMC: 10873793. DOI: 10.2196/48008.


Patients' Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study.

Simola S, Horhammer I, Xu Y, Barkas A, Fagerlund A, Hagstrom J J Med Internet Res. 2023; 25:e45974.

PMID: 37389909 PMC: 10365631. DOI: 10.2196/45974.


Benefits, Problems, and Potential Improvements in a Nationwide Patient Portal: Cross-sectional Survey of Pharmacy Customers' Experiences.

Saaskilahti M, Ojanen A, Ahonen R, Timonen J J Med Internet Res. 2021; 23(11):e31483.

PMID: 34730542 PMC: 8600438. DOI: 10.2196/31483.


References
1.
Adler-Milstein J, Embi P, Middleton B, Sarkar I, Smith J . Crossing the health IT chasm: considerations and policy recommendations to overcome current challenges and enable value-based care. J Am Med Inform Assoc. 2017; 24(5):1036-1043. PMC: 7651968. DOI: 10.1093/jamia/ocx017. View

2.
Vodicka E, Mejilla R, Leveille S, Ralston J, Darer J, Delbanco T . Online access to doctors' notes: patient concerns about privacy. J Med Internet Res. 2013; 15(9):e208. PMC: 3785972. DOI: 10.2196/jmir.2670. View

3.
Woods S, Schwartz E, Tuepker A, Press N, Nazi K, Turvey C . Patient experiences with full electronic access to health records and clinical notes through the My HealtheVet Personal Health Record Pilot: qualitative study. J Med Internet Res. 2013; 15(3):e65. PMC: 3636169. DOI: 10.2196/jmir.2356. View

4.
Beard L, Schein R, Morra D, Wilson K, Keelan J . The challenges in making electronic health records accessible to patients. J Am Med Inform Assoc. 2011; 19(1):116-20. PMC: 3240757. DOI: 10.1136/amiajnl-2011-000261. View

5.
Roberts K, Boland M, Pruinelli L, Dcruz J, Berry A, Georgsson M . Biomedical informatics advancing the national health agenda: the AMIA 2015 year-in-review in clinical and consumer informatics. J Am Med Inform Assoc. 2016; 24(e1):e185-e190. PMC: 6080724. DOI: 10.1093/jamia/ocw103. View