» Articles » PMID: 30093794

Seeing Beyond the Margins: Challenges to Informed Inclusion of Vulnerable Populations in Research

Overview
Authors
Affiliations
Soon will be listed here.
Citing Articles

Understanding deep disadvantage at the end of life: A nationwide analysis of unclaimed deaths.

Brite J, Heiland F, Balk D Soc Sci Med. 2024; 365:117551.

PMID: 39675309 PMC: 11769727. DOI: 10.1016/j.socscimed.2024.117551.


Bridging the Language Gap in Healthcare: Implementing a Qualified Medical Interpreter Program for Lesser-Spoken Languages.

Mavreles Ogrodnick M, OConnor M, Lukas C, Feinberg I Int J Environ Res Public Health. 2024; 21(10).

PMID: 39457350 PMC: 11507404. DOI: 10.3390/ijerph21101377.


Waiving the consent requirement to mitigate bias in observational precision medicine research.

Song R Int J Equity Health. 2024; 23(1):142.

PMID: 39026212 PMC: 11256561. DOI: 10.1186/s12939-024-02221-4.


Engaging publics in biobanking and genetic research governance - a literature review towards informing practice in India.

Warrier P, Ho C, Bull S, Vaz M, Vaz M Wellcome Open Res. 2024; 6:5.

PMID: 38645686 PMC: 11026954. DOI: 10.12688/wellcomeopenres.16558.2.


Older Adult Frequent 9-1-1 Callers for Emergency Medical Services in a Large Metropolitan City: Individual- and System-Level Considerations.

Martinez B, Aranda M, Sanko S, Aguilar I, Vega W J Emerg Med. 2023; 65(6):e522-e530.

PMID: 37852810 PMC: 10871157. DOI: 10.1016/j.jemermed.2023.07.006.


References
1.
Koenig B . Have we asked too much of consent?. Hastings Cent Rep. 2014; 44(4):33-4. PMC: 4249719. DOI: 10.1002/hast.329. View

2.
Wolf S, Burke W, Koenig B . Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. J Law Med Ethics. 2015; 43(3):486-501. PMC: 4620583. DOI: 10.1111/jlme.12291. View

3.
Steinke E . Research ethics, informed consent, and participant recruitment. Clin Nurse Spec. 2004; 18(2):88-95. DOI: 10.1097/00002800-200403000-00014. View

4.
Paskett E, Reeves K, McLaughlin J, Katz M, McAlearney A, Ruffin M . Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience. Contemp Clin Trials. 2008; 29(6):847-61. PMC: 2642621. DOI: 10.1016/j.cct.2008.07.006. View

5.
Kurian A . BRCA1 and BRCA2 mutations across race and ethnicity: distribution and clinical implications. Curr Opin Obstet Gynecol. 2009; 22(1):72-8. DOI: 10.1097/GCO.0b013e328332dca3. View