Decisions and the Involvement of Cancer Patient Survivors: a Moral Imperative

Overview

Journal J Healthc Leadersh

Publisher Dove Medical Press

Specialty Health Services

Date 2018 Jan 23

PMID 29355188

Citations 4

Authors

Gabriella Pravettoni

Ilaria Cutica

Simona Righetti

Ketti Mazzocco

Affiliations

Soon will be listed here.

Abstract

Purpose: The aim of this study was to review the experiences of direct involvement in patient survivorship for treatment and research.

Methods: This is a narrative-focused review of the following two recent experiences of patient involvement: the Chordoma Foundation and the Triple Negative Breast Cancer Foundation.

Results: These two examples represent concrete experiences that patients have built to favor a real involvement in the care and treatment of tumors. These experiences are profoundly modifying how cancer research is conducted and draw attention to the psychosocial dimensions of health care.

Conclusion: These examples represent the new scenario in which modern medicine faces completely new challenges, copes with new needs, and cooperates with new health care professionals.

Implications: Involving patients in a new perspective raises practical and ethical challenges for organizations to work together, for health providers to be professionally skilled and for the government to promote safeguarding policies.

Citing Articles

Toward a new personalized psycho-social approach for the support of prostate cancer and their caregivers dyads: a pilot study.

Cincidda C, Pizzoli S, Oliveri S, Guiddi P, Pravettoni G Front Med (Lausanne). 2024; 11:1356385.

PMID: 38646557 PMC: 11027503. DOI: 10.3389/fmed.2024.1356385.

Caregiving and Shared Decision Making in Breast and Prostate Cancer Patients: A Systematic Review.

Cincidda C, Pizzoli S, Ongaro G, Oliveri S, Pravettoni G Curr Oncol. 2023; 30(1):803-823.

PMID: 36661710 PMC: 9857468. DOI: 10.3390/curroncol30010061.

The Role of Clinical Psychology and Peer to Peer Support in the Management of Chronic Medical Conditions - A Practical Example With Adults With Congenital Heart Disease.

Callus E, Pravettoni G Front Psychol. 2018; 9:731.

PMID: 29899714 PMC: 5989349. DOI: 10.3389/fpsyg.2018.00731.

The effects of presenting oncologic information in terms of opposites in a medical context.

Burro R, Savardi U, Annunziata M, de Paoli P, Bianchi I Patient Prefer Adherence. 2018; 12:443-459.

PMID: 29628757 PMC: 5877498. DOI: 10.2147/PPA.S147091.

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