Moving Forward: Breaking the Cycle of Mistrust Between American Indians and Researchers

Overview

Journal Am J Public Health

Specialty Public Health

Date 2013 Oct 19

PMID 24134368

Citations 87

Authors

Christina M Pacheco

Sean M Daley

Travis Brown

Melissa Filippi

K Allen Greiner

Christine M Daley

Affiliations

Soon will be listed here.

Abstract

American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants' rights. CAICH educates health researchers about the importance of learning and respecting a community's history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants.

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