Development of a Measure of Asthma-specific Quality of Life Among Adults

Overview

Journal Qual Life Res

Specialties Pharmacology
Rehabilitation Medicine

Date 2013 Sep 25

PMID 24062237

Citations 13

Authors

Nicole K Eberhart

Cathy D Sherbourne

Maria Orlando Edelen

Brian D Stucky

Nancy L Sin

Marielena Lara

Affiliations

Soon will be listed here.

Abstract

Purpose: A key goal in asthma treatment is improvement in quality of life (QoL), but existing measures often confound QoL with symptoms and functional impairment. The current study addresses these limitations and the need for valid patient-reported outcome measures by using state-of-the-art methods to develop an item bank assessing QoL in adults with asthma. This article describes the process for developing an initial item pool for field testing.

Methods: Five focus group interviews were conducted with a total of 50 asthmatic adults. We used "pile sorting/binning" and "winnowing" methods to identify key QoL dimensions and develop a pool of items based on statements made in the focus group interviews. We then conducted a literature review and consulted with an expert panel to ensure that no key concepts were omitted. Finally, we conducted individual cognitive interviews to ensure that items were well understood and inform final item refinement.

Results: Six hundred and sixty-one QoL statements were identified from focus group interview transcripts and subsequently used to generate a pool of 112 items in 16 different content areas.

Conclusions: Items covering a broad range of content were developed that can serve as a valid gauge of individuals' perceptions of the effects of asthma and its treatment on their lives. These items do not directly measure symptoms or functional impairment, yet they include a broader range of content than most existent measures of asthma-specific QoL.

Citing Articles

Development of Methods for the Mapping of Utilities Using Mixture Models: Mapping the AQLQ-S to the EQ-5D-5L and the HUI3 in Patients with Asthma.

Gray L, Alava M, Wailoo A Value Health. 2018; 21(6):748-757.

PMID: 29909881 PMC: 6026598. DOI: 10.1016/j.jval.2017.09.017.

Performance of the Asthma Impact on Quality of Life Scale (A-IQOLS) in diverse asthma research populations and demographic subgroups.

Wilson S, Wise R, Castro M, Mulligan M, Ayala E, Chausow A J Allergy Clin Immunol. 2018; 143(1):395-402.e7.

PMID: 29729942 PMC: 6215741. DOI: 10.1016/j.jaci.2018.02.056.

School nurse asthma program reduces healthcare utilization in children with persistent asthma.

Trivedi M, Patel J, Lessard D, Kremer T, Byatt N, Phipatanakul W J Asthma. 2017; 55(10):1131-1137.

PMID: 29206057 PMC: 5988937. DOI: 10.1080/02770903.2017.1396473.

A new measure to assess asthma's effect on quality of life from the patient's perspective.

Wilson S, Mulligan M, Ayala E, Chausow A, Huang Q, Knowles S J Allergy Clin Immunol. 2017; 141(3):1085-1095.

PMID: 28579376 PMC: 5711601. DOI: 10.1016/j.jaci.2017.02.047.

Mapping Between the Sydney Asthma Quality of Life Questionnaire (AQLQ-S) and Five Multi-Attribute Utility Instruments (MAUIs).

Kaambwa B, Chen G, Ratcliffe J, Iezzi A, Maxwell A, Richardson J Pharmacoeconomics. 2016; 35(1):111-124.

PMID: 27557995 DOI: 10.1007/s40273-016-0446-4.

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