Remote Monitoring of Pain and Symptoms Using Wireless Technology in Children and Adolescents with Sickle Cell Disease

Overview

Journal J Am Assoc Nurse Pract

Publisher Wolters Kluwer

Specialty Nursing

Date 2013 Jan 3

PMID 23279278

Citations 22

Authors

Eufemia Jacob

Joana Duran

Jennifer Stinson

Mary Ann Lewis

Lonnie Zeltzer

Affiliations

Soon will be listed here.

Abstract

Purpose: The purpose of this study was to examine (a) symptoms, (b) pain characteristics (intensity, location, quality), (c) pain medications and nonpharmacological strategies used for pain, (d) thoughts and feelings, and (e) healthcare visits. We also examined the relationship between pain and sleep.

Data Sources: Pain and symptoms were entered on an electronic e-Diary using a smartphone and were remotely monitored by an advanced practice registered nurse (APRN). Sixty-seven children and adolescents (10-17 years) reported mild to severe pain at home that did not require healthcare visits. Symptoms reported were (a) general symptoms such as tiredness/fatigue (34.7%), headache (20.8%), yellowing of the eyes (28.4%); (b) respiratory symptoms such as sniffling (32.9%), coughing (19.1%), changes in breathing (10.0%); and (c) musculoskeletal symptoms such as stiffness in joints (15.8%). A significant negative correlation was found between pain and sleep (r = -.387, p = .024). Factors that predict pain included previous history of sickle cell disease (SCD) related events, symptoms, and negative thoughts.

Conclusion: Pain and multiple symptoms entered on a web-based e-Diary were remotely monitored by an APRN and prompted communications, further evaluation, and recommendations.

Implications For Practice: Remote monitoring using wireless technology may facilitate timely management of pain and symptoms and minimize negative consequences in SCD.

Citing Articles

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Exploring the use of a digital therapeutic intervention to support the pediatric cardiac care journey: Qualitative study on clinician perspectives.

Wali S, Tharani A, Balmer-Minnes D, Cafazzo J, Laks J, Jeewa A PLOS Digit Health. 2023; 2(12):e0000371.

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Pain Management Mobile Applications: A Systematic Review of Commercial and Research Efforts.

Koumpouros Y, Georgoulas A Sensors (Basel). 2023; 23(15).

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Feasibility and Quality Validation of a Mobile Application for Enhancing Adherence to Opioids in Sickle Cell Disease.

Sop D, Crouch T, Zhang Y, Lipato T, Wilson J, Smith W Healthcare (Basel). 2022; 10(8).

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Evaluation of Longitudinal Pain Study in Sickle Cell Disease (ELIPSIS) by patient-reported outcomes, actigraphy, and biomarkers.

Pittman D, Hines P, Beidler D, Rybin D, Frelinger A, Michelson A Blood. 2020; 137(15):2010-2020.

PMID: 33067606 PMC: 8057263. DOI: 10.1182/blood.2020006020.

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