Institutional Futility Policies Are Inherently Unfair
Overview
Health Services
Medical Ethics
Authors
Affiliations
For many years a debate has raged over what constitutes futile medical care, if patients have a right to demand what doctors label as futile, and whether physicians should be obliged to provide treatments that they think are inappropriate. More recently, the argument has shifted away from the difficult project of definitions, to outlining institutional policies and procedures that take a measured and patient-by-patient approach to deciding if an existing or desired intervention is futile. The prototype is the Texas Advance Directives Act, but similar procedures have been widely implemented both with and without the protection of the law. While this method has much to recommend it, there are inherent moral flaws that have not received as much discussion as warranted. Because these strategies adopt a semblance of procedural justice, it is assumed that the outcomes of such proceedings will be both correct and fair. In this paper, I argue that there are three main irremediable defects in the policy approach: there is the potential for arbitrary decision-making about futility in specific cases; there are structural, pre-ordained consequences for ethnic minorities who would be disproportionately affected by the use of these procedures; and the use of rationing justifications to support the use of these policies. These flaws detract so much from any benefit that could be derived that they make such strategies more harmful than helpful.
Whose Good Death? Valuation and Standardization as Mechanisms of Inequality in Hospitals.
Hauschildt K J Health Soc Behav. 2022; 65(2):221-236.
PMID: 36523154 PMC: 10267289. DOI: 10.1177/00221465221143088.
Hauschildt K, De Vries R Sociol Health Illn. 2019; 42(2):307-326.
PMID: 31565808 PMC: 7012693. DOI: 10.1111/1467-9566.13003.
When Religion and Medicine Clash: Non-beneficial Treatments and Hope for a Miracle.
Rosoff P HEC Forum. 2018; 31(2):119-139.
PMID: 29881898 DOI: 10.1007/s10730-018-9352-9.
Is There Ever a Role for the Unilateral Do Not Attempt Resuscitation Order in Pediatric Care?.
Marron J, Jones E, Wolfe J J Pain Symptom Manage. 2017; 55(1):164-171.
PMID: 28916293 PMC: 5735032. DOI: 10.1016/j.jpainsymman.2017.09.006.
Licensing Surrogate Decision-Makers.
Rosoff P HEC Forum. 2016; 29(2):145-169.
PMID: 28012054 DOI: 10.1007/s10730-016-9316-x.