Psychological Experience of Parents of Children with Type 1 Diabetes: a Systematic Mixed-studies Review

Overview

Journal Diabetes Educ

Publisher Sage Publications

Specialties Endocrinology
Nursing

Date 2012 May 15

PMID 22581804

Citations 163

Authors

Robin Whittemore

Sarah Jaser

Ariana Chao

Myoungock Jang

Margaret Grey

Affiliations

Soon will be listed here.

Abstract

Purpose: The purpose of this review is to describe the prevalence of psychological distress in parents of children with type 1 diabetes (T1DM), the relationship between parental psychological distress and health outcomes, and parents' psychological experience of having a child with T1DM. Clinical and research implications are presented.

Method: A systematic mixed-studies review was undertaken to review the quantitative and qualitative research on the parental experience of having a child with T1DM. A total of 34 articles met the inclusion criteria and were included in the review.

Results: The prevalence of parental psychological distress across all studies ranged from 10% to 74%, with an average of 33.5% of parents reporting distress at diagnosis and 19% of parents reporting distress 1 to 4 years after diagnosis. Parental psychological distress in parents of children with T1DM, regardless of how it was defined, was associated with higher child self-report of stress and depressive symptoms, more problematic child behavior, and lower child self-report of quality of life. Parental psychological distress also had negative effects on diabetes management. Themes of the qualitative synthesis indicated that parents perceived T1DM as a difficult diagnosis that contributed to significant family disruption. Adjustment occurred over time; however, ongoing stress was experienced.

Conclusions: Screening for psychological distress in parents of children with T1DM is indicated, and preventive interventions are needed.

Citing Articles

Fear of hypoglycemia and sleep in children with type 1 diabetes and their parents.

Schierloh U, Aguayo G, Fichelle M, De Melo Dias C, Schritz A, Vaillant M Front Endocrinol (Lausanne). 2024; 15:1419502.

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ISPAD Clinical Practice Consensus Guidelines 2024: Screening, Staging, and Strategies to Preserve Beta-Cell Function in Children and Adolescents with Type 1 Diabetes.

Haller M, Bell K, Besser R, Casteels K, Couper J, Craig M Horm Res Paediatr. 2024; 97(6):529-545.

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Diabetes Device Satisfaction Among Adolescents Living With Type 1 Diabetes and Their Parents.

Wong J, Alamarie S, Hanes S, Flores H, Ngo J, Schneider-Utaka A J Diabetes Sci Technol. 2024; :19322968241296135.

PMID: 39529259 PMC: 11571572. DOI: 10.1177/19322968241296135.

Feasibility and Acceptability of a Self-Guided Digital Family Skills Management Intervention for Children Newly Diagnosed With Type 1 Diabetes: Pilot Randomized Controlled Trial.

Hughes Lansing A, Cohen L, Glaser N, Loomba L JMIR Form Res. 2024; 8:e59246.

PMID: 39432892 PMC: 11535796. DOI: 10.2196/59246.

Parents' and children's experiences of participating in a randomized controlled clinical trial: AIDIT-QS.

Sand P, Kinberg E, Sundberg F, Forsander G Int J Qual Stud Health Well-being. 2024; 19(1):2408829.

PMID: 39360673 PMC: 11451326. DOI: 10.1080/17482631.2024.2408829.

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