Developing and Implementing an Institute-wide Data Sharing Policy

Overview

Journal Genome Med

Publisher Biomed Central

Specialty Genetics

Date 2011 Sep 30

PMID 21955348

Citations 19

Authors

Stephanie Om Dyke

Tim Jp Hubbard

Affiliations

Soon will be listed here.

Abstract

The Wellcome Trust Sanger Institute has a strong reputation for prepublication data sharing as a result of its policy of rapid release of genome sequence data and particularly through its contribution to the Human Genome Project. The practicalities of broad data sharing remain largely uncharted, especially to cover the wide range of data types currently produced by genomic studies and to adequately address ethical issues. This paper describes the processes and challenges involved in implementing a data sharing policy on an institute-wide scale. This includes questions of governance, practical aspects of applying principles to diverse experimental contexts, building enabling systems and infrastructure, incentives and collaborative issues.

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