Quality of Life Instruments and Definitions in Individuals with Spinal Cord Injury: a Systematic Review

Overview

Journal Spinal Cord

Specialty Neurology

Date 2009 Dec 24

PMID 20029393

Citations 68

Authors

M R Hill

V K Noonan

B M Sakakibara

W C Miller

Affiliations

Soon will be listed here.

Abstract

Study Design: A systematic review.

Objective: To critically review quality of life (QOL) instruments used with spinal cord injury (SCI) populations.

Setting: Vancouver, Canada.

Methods: A systematic literature review was conducted for publications assessing the measurement properties of QOL outcome measures. Pre-established criteria were used to evaluate the measurement properties.

Results: Fourteen articles reporting on 13 QOL instruments met the inclusion criteria, including the Patient Reported Impact of Spasticity Measure (PRISM), Quality of Well-being Scale, Qualiveen, Sickness Impact Profile (SIP68), Short Form (SF)-36, SF-36V, SF-12, SF-6D, Quality of Life Index, Quality of Life Profile for Adults with Physical Disabilities (QOLP-PD), Satisfaction with Life Scale, Sense of Well-being Index (SWBI), and the World Health Organization Quality of Life-BREF scale (WHOQOL-BREF). The SF-36 and WHOQOL-BREF have been widely used and validated. The SIP68, QOLP-PD, SF-36V, and SWBI are promising with limited investigation. The Qualiveen and PRISM performed well and are specific to SCI complications.

Conclusion: The WHOQOL-BREF is presently the most acceptable and established instrument to assess QOL after SCI. The SIP68, QOLP-PD, SF-36V, and SWBI are promising; however, require further evaluation of their measurement properties.

Citing Articles

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Using remotely delivered Spring Forest Qigong™ to reduce neuropathic pain in adults with spinal cord injury: protocol of a quasi-experimental feasibility clinical trial.

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