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Vasiliki Rahimzadeh

Explore the profile of Vasiliki Rahimzadeh including associated specialties, affiliations and a list of published articles. Areas
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Recent Articles
1.
Silva P, Rahimzadeh V, Powell R, Husain J, Grossman S, Hansen A, et al.
Health Res Policy Syst . 2024 Dec; 22(1):170. PMID: 39695714
Most forms of clinical research examine a very minute cross section of the patient journey. Much of the knowledge and evidence base driving current genomic medicine practice entails blind spots...
2.
Morain S, Brickler A, Ali J, ORourke P, Spector-Bagdady K, Wilfond B, et al.
Clin Trials . 2024 Nov; :17407745241290782. PMID: 39587730
A growing literature has explored the ethical obligations and current practices related to sharing aggregate results with research participants. However, no prior work has examined these issues in the context...
3.
Liaw W, Hischier B, James C, Kakadiaris I, Kueper J, Rahimzadeh V
Ann Fam Med . 2024 Nov; 22(6):570-571. PMID: 39586707
No abstract available.
4.
Rahimzadeh V, Nelson S, Thorogood A, Lawson J, Fullerton S
Nat Rev Genet . 2024 Oct; 26(2):75-77. PMID: 39424902
No abstract available.
5.
Morain S, ORourke P, Ali J, Rahimzadeh V, Check D, Bosworth H, et al.
Learn Health Syst . 2024 Jul; 8(3):e10413. PMID: 39036536
While considerable scholarship has explored responsibilities owed to research participants at the conclusion of explanatory clinical trials, no guidance exists regarding responsibilities owed at the conclusion of a pragmatic clinical...
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Rahimzadeh V, Baek J, Lawson J, Dove E
BMC Med Ethics . 2024 May; 25(1):51. PMID: 38706004
Data access committees (DAC) gatekeep access to secured genomic and related health datasets yet are challenged to keep pace with the rising volume and complexity of data generation. Automated decision...
8.
Baek J, Lawson J, Rahimzadeh V
JMIR Form Res . 2024 Mar; 8:e49822. PMID: 38506894
Background: New federal policies along with rapid growth in data generation, storage, and analysis tools are together driving scientific data sharing in the United States. At the same, triangulating human...
9.
Friedman J, Bombard Y, Carleton B, Issa A, Knoppers B, Plon S, et al.
Genet Med . 2023 Nov; 26(2):101033. PMID: 38007624
This white paper was prepared by the Global Alliance for Genomics and Health Regulatory and Ethics Work Stream's Pediatric Task Team to review and provide perspective with respect to ethical,...
10.
Rahimzadeh V, Maxson Jones K, Majumder M, Kahana M, Rutishauser U, Williams Z, et al.
Neuron . 2023 Nov; 111(23):3710-3715. PMID: 37944519
Sharing human brain data can yield scientific benefits, but because of various disincentives, only a fraction of these data is currently shared. We profile three successful data-sharing experiences from the...