Rowan Forbes Shepherd
Overview
Explore the profile of Rowan Forbes Shepherd including associated specialties, affiliations and a list of published articles.
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23
Citations
54
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Recent Articles
1.
Pearce E, Majid A, Brown T, Shepherd R, Rising C, Wilsnack C, et al.
JMIR Form Res
. 2024 Dec;
8:e64343.
PMID: 39680438
Background: Web-based information and social support are commonly used in rare disease communities where geographic dispersion and limited provider expertise complicate in-person support. We examined web-based resource use among caregivers...
2.
Pearce E, Majid A, Brown T, Wilsnack C, Rising C, Thompson A, et al.
SSM Qual Res Health
. 2024 Nov;
6.
PMID: 39554689
Background: Medical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in...
3.
Wilsnack C, Rising C, Pearce E, Shepherd R, Thompson A, Majid A, et al.
Eur J Hum Genet
. 2024 Oct;
32(12):1615-1623.
PMID: 39354183
Families with rare diseases, such as telomere biology disorders (TBDs), may have extensive unmet needs given the heterogeneity, chronicity, and potential severity of illness. TBDs are rare inherited syndromes associated...
4.
Rising C, Shepherd R, Sleight A, Boyd P, Wilsnack C, Thompson A, et al.
J Adolesc Young Adult Oncol
. 2024 Sep;
PMID: 39331584
Adolescents and young adults (AYAs) with cancer predisposition syndromes often experience significant physical and psychosocial burdens. These burdens include cancer worry and potentially distressing bodily changes due to risk-reducing procedures...
5.
Rising C, Huelsnitz C, Shepherd R, Klein W, Sleight A, Wilsnack C, et al.
J Behav Med
. 2024 Apr;
47(4):707-720.
PMID: 38642305
Individuals with inherited cancer syndromes, such as Li-Fraumeni syndrome (LFS), may be motivated to adopt health-protective behaviors, such as eating more fruits and vegetables and increasing physical activity. Examining these...
6.
Waterland J, Beer C, Shepherd R, Forrest L
Patient
. 2024 Mar;
17(4):481.
PMID: 38554228
No abstract available.
7.
Waterland J, Beer C, Shepherd R, Forrest L
Patient
. 2024 Feb;
17(4):471-479.
PMID: 38401039
Background And Objective: Consumer engagement improves research quality and relevance but can be difficult to implement. This study aimed to explore the motivations and understand the barriers, if any, experienced...
8.
Shepherd R, Bradford A, Lieschke M, Shackleton K, Hyatt A
Trials
. 2023 Jun;
24(1):400.
PMID: 37312206
Background: As cancer therapies increase in their complexity, effective communication among patients, physicians, and research staff is critical for optimal clinical trial management. Currently, we understand little about on-trial communication...
9.
Werner-Lin A, Shepherd R, Rising C, Thompson A, Huelsnitz C, Wilsnack C, et al.
Psychooncology
. 2022 Dec;
32(3):375-382.
PMID: 36514197
Objectives: Adolescents and young adult (AYA) cancer survivors face unique medical and psychosocial sequalae, including chronic health conditions, late effects of treatment and fear of recurrence. The meaning of cancer...
10.
Tutty E, Shepherd R, Hoskins C, Purvis R, Shanahan M, Boussioutas A, et al.
J Psychosoc Oncol
. 2022 Aug;
41(3):286-302.
PMID: 35959852
Purpose: This study explored the experiences of young people with hereditary diffuse gastric cancer (HDGC), an inherited cancer predisposition syndrome, as they navigate becoming and being a parent. Design: We...