J Twiss
Overview
Explore the profile of J Twiss including associated specialties, affiliations and a list of published articles.
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Snapshot
Articles
14
Citations
133
Followers
0
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Recent Articles
1.
Wapenaar M, Twiss J, Wagenaar M, Seijkens P, van den Toorn L, Stepanous J, et al.
Neth Heart J
. 2018 Oct;
26(11):579.
PMID: 30367432
Correction to:Neth Heart J 2016 https://doi.org/10.1007/s12471-016-0849-z Unfortunately the original version of this article contained Electronic Supplementary Material which should not have been published with the article due to copyright reasons.The...
2.
Graham J, Rouse M, Twiss J, McKenna S, Vidalis A
Hippokratia
. 2016 Jul;
19(2):119-24.
PMID: 27418759
Background: Ankylosing Spondylitis (AS) is a chronic rheumatic disease that has a significant impact on patient's quality of life (QoL). The Ankylosing Spondylitis Quality of Life (ASQoL) questionnaire is a...
3.
Wapenaar M, Twiss J, Wagenaar M, Seijkens P, van den Toorn L, Stepanous J, et al.
Neth Heart J
. 2016 May;
24(6):417-424.
PMID: 27197970
Background: The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is the first disease-specific instrument for pulmonary arterial hypertension (PAH) to assess patient-perceived symptoms, activity limitations and quality of life. To be...
4.
Casamento K, Laverty A, Wilsher M, Twiss J, Gabbay E, Glaspole I, et al.
Orphanet J Rare Dis
. 2016 Apr;
11:42.
PMID: 27090393
Background: We investigated the feasibility of using an online registry to provide prevalence data for multiple orphan lung diseases in Australia and New Zealand. Methods: A web-based registry, The Australasian...
5.
Twiss J, McKenna S, Graham J, Swetz K, Sloan J, Gomberg-Maitland M
Health Qual Life Outcomes
. 2016 Apr;
14:57.
PMID: 27062133
Background: Electronic formats of patient-reported outcome (PRO) measures are now routinely used in clinical research studies. When changing from a validated paper and pen to electronic administration it is necessary...
6.
Rouse M, Twiss J, McKenna S
J Med Econ
. 2016 Jan;
19(6):596-603.
PMID: 26824603
Background Efficient use of health resources requires accurate outcome assessment. Disease-specific patient-reported outcome (PRO) measures are designed to be highly relevant to patients with a specific disease. They have advantages...
7.
Twiss J, McKenna S
Qual Life Res
. 2014 Jan;
24(1):105-13.
PMID: 24477779
Background: Disease-specific patient-reported outcome (PRO) measures are designed to be highly relevant to one disease. It is widely believed that comparisons of outcomes between patients with different diseases are only...
8.
Twiss J, McKenna S, Crawford S, Tammaru M, Oprandi N
J Med Econ
. 2011 Sep;
14(6):729-38.
PMID: 21899487
Background: The Asthma Life Impact Scale (ALIS) is a disease-specific measure used to assess the quality-of-life of people with asthma. It was developed in the UK and US and has...
9.
Doward L, McKenna S, Meads D, Twiss J, Eckert B
Mult Scler
. 2009 Jun;
15(9):1092-102.
PMID: 19556315
Background: Complex diseases such as multiple sclerosis (MS) present dilemmas over the choice of patient-reported outcome measures as no single scale can inform on all types of MS impact from...
10.
Meads D, Doward L, McKenna S, Fisk J, Twiss J, Eckert B
Mult Scler
. 2009 Jun;
15(10):1228-38.
PMID: 19556314
Background: The multidimensional assessment of fatigue is complicated by the interrelation of its multiple causes and effects. Objective: The purpose of the research was to develop a unidimensional assessment of...