Erin Rothwell
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Explore the profile of Erin Rothwell including associated specialties, affiliations and a list of published articles.
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71
Citations
683
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Recent Articles
11.
Rothwell E, Riches N, Johnson E, Kaphingst K, Kehoe K, Jenkins S, et al.
J Community Genet
. 2022 Dec;
14(1):51-62.
PMID: 36534338
Informed consent is crucial for participant understanding, engagement, and partnering for research. However, current written informed consents have significant limitations, particularly for complex topics such as genomics and biobanking. Our...
12.
Burr J, Johnson A, Risenmay A, Bisping S, Serdoz E, Coleman W, et al.
Ethics Hum Res
. 2022 Nov;
44(6):32-38.
PMID: 36316971
Since the 2016 National Institutes of Health (NIH) mandate to use a single IRB (sIRB) in multicenter research, institutions have struggled to operationalize the process. In this demonstration project, the...
13.
Johnson A, Pautler M, Burr J, Abdelsamad N, VanBuren J, Rigtrup L, et al.
Contemp Clin Trials Commun
. 2022 Aug;
29:100971.
PMID: 36033361
Single IRB (SIRB) consultation resources were established by the Utah Trial Innovation Center to assist and educate investigative teams prior to the submission of funding applications for multisite, cooperative research....
14.
An Approach to Reviewing Local Context for Exception from Informed Consent Trials Using a Single IRB
Johnson A, Rigtrup L, VanBuren J, Rothwell E, Dean J
Ethics Hum Res
. 2021 Nov;
43(6):42-48.
PMID: 34751515
In the context of emergency research, researchers can ask the institutional review board (IRB) to waive the regulatory requirement that individuals provide informed consent when enrolling in research studies. A...
15.
Einerson B, Watt M, Sartori B, Silver R, Rothwell E
BMJ Open
. 2021 Nov;
11(11):e052766.
PMID: 34732490
Objective: To describe the lived experience of patients undergoing diagnosis and treatment of placenta accreta spectrum (PAS). Design: Qualitative study of semi-structured interviews. A content analysis was used to analyse...
16.
Rothwell E, Cheek-ODonnell S, Johnson E, Wilson A, Anderson R, Botkin J
J Commun Healthc
. 2021 Nov;
14(3):252-258.
PMID: 34721662
Purpose: Expanded carrier screening (ECS) during prenatal care is an important test for identifying prospective parents' risk of inherited genetic diseases. However, barriers remain for effectively educating patients about ECS....
17.
Ford D, Johnson A, Nichols J, Rothwell E, Dubinett S, Naeim A
J Clin Transl Sci
. 2021 Jun;
5(1):e107.
PMID: 34192061
The COVID-19 pandemic changed the clinical research landscape in America. The most urgent challenge has been to rapidly review protocols submitted by investigators that were designed to learn more about...
18.
Rothwell E, Brassil D, Barton-Baxter M, Brownley K, Dickert N, Ford D, et al.
J Clin Transl Sci
. 2021 Jun;
5(1):e105.
PMID: 34192059
In this paper, we address how the COVID-19 pandemic has impacted informed consent for clinical research through examining experiences within Clinical and Translation Science Award (CTSA) institutions. We begin with...
19.
Crawford A, Hopkin A, Rindler M, Johnson E, Clark L, Rothwell E
J Obstet Gynecol Neonatal Nurs
. 2021 Mar;
50(4):402-411.
PMID: 33775641
Objective: To explore the experiences of women who received life-limiting fetal diagnoses during pregnancy and support from a perinatal palliative care program. Design: Descriptive qualitative. Setting: The perinatal palliative care...
20.
Frost C, Johnson E, Witte B, Stark L, Botkin J, Rothwell E
J Community Genet
. 2021 Jan;
12(1):199-203.
PMID: 33481187
We developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. Newborn screening programs test for treatable...