Carla Romano
Overview
Explore the profile of Carla Romano including associated specialties, affiliations and a list of published articles.
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13
Citations
26
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Recent Articles
1.
Yee K, Lewis S, Evans E, Romano C, Alexanderian D
Orphanet J Rare Dis
. 2024 Mar;
19(1):110.
PMID: 38462612
Background: Approximately two-thirds of patients with mucopolysaccharidosis II (MPS II) have a severe, neuronopathic phenotype, characterized by somatic, cognitive, and behavioral issues. Current standard of care for the treatment of...
2.
Williams V, Romano C, Clark M, Korver D, Williams N, Goss D, et al.
J Patient Rep Outcomes
. 2023 Oct;
7(1):105.
PMID: 37902847
Background: Patient-reported outcome measures that facilitate self-report by children are needed to reduce the bias of proxy report. We previously developed an electronic Pediatric Asthma Symptom Diary (ePASD) to assess...
3.
Callahan L, Samsell B, DiBenedetti D, Frangiosa T, Slota C, Biggar V, et al.
Neurol Ther
. 2023 Oct;
13(1):53-67.
PMID: 37889399
Introduction: Non-professional care partners play an important and often evolving role in the care of persons living with Alzheimer's disease (PLWAD). We investigated two elements of the care partner experience,...
4.
Danese D, Goss D, Romano C, Gupta C
BMC Nephrol
. 2023 Oct;
24(1):319.
PMID: 37884879
Background: Without effective intervention, primary hyperoxaluria type 1 (PH1) causes oxalate-induced kidney damage, leading to end-stage kidney disease and serious complications throughout the body. Although PH1 carries a heavy burden...
5.
Chan E, Williams V, Romano C, Fehnel S, Slagle A, Stoddard J, et al.
J Patient Rep Outcomes
. 2023 May;
7(1):45.
PMID: 37195456
Background: The Symptoms of Infection with Coronavirus-19 (SIC) is a 30-item patient-reported outcome (PRO) measure scored by body system composites to assess signs/symptoms of coronavirus disease 2019 (COVID-19). In addition...
6.
DiBenedetti D, Menne H, Paulsen R, Krasa H, Vradenburg G, Comer M, et al.
Neurol Ther
. 2023 Feb;
12(2):571-595.
PMID: 36790638
Introduction: Insight into the relationship between concepts that matter to the people affected by Alzheimer's disease (AD) and the clinical outcome assessments (COAs) commonly used in AD clinical studies is...
7.
Hauber B, Paulsen R, Krasa H, Vradenburg G, Comer M, Callahan L, et al.
Neurol Ther
. 2023 Feb;
12(2):505-527.
PMID: 36763306
Introduction: In this phase of the ongoing What Matters Most study series, designed to evaluate concepts that are meaningful to people affected by Alzheimer's disease (AD), we quantified the importance...
8.
Romano C, Mayorga M, Ruiz-Guinazu J, Trudel G, Fehnel S, McQuarrie K, et al.
J Patient Rep Outcomes
. 2023 Jan;
7(1):7.
PMID: 36701073
Background: The Symptoms of Infection with Coronavirus-19 (SIC) is a 30-item patient-reported outcome measure to evaluate the presence and severity of COVID-19 signs/symptoms in adults. This study expanded the context...
9.
Romano C, Fehnel S, Stoddard J, Sadoff J, Lewis S, McNulty P, et al.
J Patient Rep Outcomes
. 2022 Jul;
6(1):85.
PMID: 35904710
Background: Given the urgent need for vaccines and treatments for coronavirus disease 2019 (COVID-19), the Symptoms of Infection with Coronavirus-19 (SIC), a comprehensive, patient-reported outcome (PRO) measure of signs and...
10.
Romano C, Harris N, Gnanasakthy A, DAlessio D, Chandiwana D
J Patient Rep Outcomes
. 2022 Jun;
6(1):60.
PMID: 35657533
Background: Patient-reported outcome (PRO) measures are critical for assessing treatment benefit of anticancer treatments. Although PRO measures have been developed with the intention of capturing patient-centric concepts, a gap exists...