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Ann Martin

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Articles 18
Citations 291
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Recent Articles
1.
Armstrong C, Grant S, Kinnett K, Denger B, Martin A, Coulter I, et al.
Eur J Pers Cent Healthc . 2021 Aug; 7(3):476-489. PMID: 34422276
Background: Patient engagement in clinical practice guideline (CPG) development has increased significantly in recent years. However, only a few patients and caregivers join CPG development groups. Objective: To describe participant...
2.
Khodyakov D, Denger B, Grant S, Kinnett K, Armstrong C, Martin A, et al.
Eur J Pers Cent Healthc . 2021 Jul; 7(3):470-475. PMID: 34277012
Although clinical practice guidelines (CPGs) provide recommendations for how best to treat a typical patient with a given condition, patients and their representatives are not always engaged in CPG development....
3.
Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Booth M, et al.
Med Decis Making . 2019 Nov; 39(8):1019-1031. PMID: 31722623
To determine the patient-centeredness of endocrine and bone health Duchenne muscular dystrophy (DMD) care considerations using the RAND/PPMD Patient-Centeredness Method (RPM), which is a novel, online, modified-Delphi approach to engaging...
4.
Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Peay H, et al.
Patient . 2019 Sep; 13(1):11-21. PMID: 31544219
Patients and caregivers are increasingly recognized as key stakeholders in developing clinical practice guidelines (CPGs). Online engagement approaches offer the promise of a rigorous, scalable, and convenient engagement method. This...
5.
Denger B, Kinnett K, Martin A, Grant S, Armstrong C, Khodyakov D
Orphanet J Rare Dis . 2019 Aug; 14(1):205. PMID: 31429780
Background: Clinical care guidelines are typically developed by clinicians and researchers. Including patient and caregiver voices in guideline development may help create guidelines that are more useful for patients and...
6.
Eekhoff L, Edwards J, Martin A, Prijoles E
J Genet Couns . 2019 Aug; 28(5):993-1002. PMID: 31373078
Duchenne and Becker muscular dystrophy (DBMD) are X-linked conditions causing progressive muscle weakness, muscle wasting, and cardiomyopathy in affected males. Two-thirds of cases of DBMD are inherited from a carrier...
7.
Cowen L, Mancini M, Martin A, Lucas A, Donovan J
BMC Neurol . 2019 May; 19(1):84. PMID: 31046703
Background: Treatment options for Duchenne muscular dystrophy remain limited, although consensus treatment guidelines recommend corticosteroid use. Methods: This retrospective analysis assessed corticosteroid use in ambulatory and nonambulatory US males with...
8.
Gissy J, Johnson T, Fox D, Kumar A, Ciafaloni E, van Essen A, et al.
Neuromuscul Disord . 2017 Jul; 27(10):905-910. PMID: 28739181
Individuals with Duchenne muscular dystrophy (DMD) often exhibit delayed motor and cognitive development, including delayed onset of ambulation. Data on age when loss of independent ambulation occurs are well established...
9.
Gordon S, Fischer C, Martin A, Rosman I, Council M
Dermatol Surg . 2017 Jun; 43(8):1012-1016. PMID: 28654578
Background: Microcystic adnexal carcinoma (MAC) is a rare, locally aggressive cutaneous neoplasm that commonly occurs on the face. Objective: The purpose of this article is to comprehensively review the current...
10.
Khodyakov D, Kinnett K, Grant S, Lucas A, Martin A, Denger B, et al.
JMIR Res Protoc . 2017 Apr; 6(4):e57. PMID: 28455279
Background: Clinical guidelines provide systematically developed recommendations for deciding on appropriate health care options for specific conditions and clinical circumstances. Up until recently, patients and caregivers have rarely been included...