» Articles » PMID: 8468013

The Perspective of the Patient with Alzheimer's Disease: a Neglected Dimension of Dementia Research

Overview
Journal Gerontologist
Specialty Geriatrics
Date 1993 Apr 1
PMID 8468013
Citations 22
Authors
Affiliations
Soon will be listed here.
Abstract

The patient perspective has been largely ignored in studies of Alzheimer's disease. The person with dementia is often relegated to the status of object rather than legitimate contributor to the research process and much can be gained from a systematic study of patients' views regarding their illness and care. We examine the status of dementia patients in three research areas and identify research challenges and opportunities that may substantially increase our understanding of dementia.

Citing Articles

Experiences of participant and public involvement in an international randomized controlled trial for people living with dementia and their informal caregivers.

Bloska J, Crabtree S, Wollersberger N, Mitchell O, Coles J, Halsey C Res Involv Engagem. 2024; 10(1):43.

PMID: 38698480 PMC: 11064380. DOI: 10.1186/s40900-024-00574-2.


Use of adapted or modified methods with people with dementia in research: A scoping review.

Conway E, Maceachen E, Middleton L, McAiney C Dementia (London). 2023; 22(8):1994-2023.

PMID: 37871184 PMC: 10644684. DOI: 10.1177/14713012231205610.


Validation of the International Classification of Functioning, Disability and Health Core Sets for traumatic brain injury from Australian community patient perspectives.

Chung P, Khan F, Judson R J Rehabil Med. 2021; 53(7):jrm00218.

PMID: 34240223 PMC: 8638734. DOI: 10.2340/16501977-2860.


Assessing people with dementia participating in cognitive stimulation activities-A qualitative pilot video analysis exploring the importance of facilitating the participation.

Thoft D, Ottesen A, Jensen A, Ward A Health Expect. 2021; 24(4):1524-1534.

PMID: 34114709 PMC: 8369123. DOI: 10.1111/hex.13300.


A dyadic perspective on assessment in Alzheimer's dementia: Supporting both care partners across the disease continuum.

Orsulic-Jeras S, Whitlatch C, Powers S, Johnson J Alzheimers Dement (N Y). 2020; 6(1):e12037.

PMID: 32885021 PMC: 7453780. DOI: 10.1002/trc2.12037.