The Realities of Caring for a Person with a Mental Disorder in Rural and Remote Capricorn District of South Africa: A Qualitative Study

Overview

Journal Community Ment Health J

Specialty Health Services

Date 2024 Sep 23

PMID 39313738

Authors

Thembi Nkomo

Mokoko Percy Kekana

Affiliations

Soon will be listed here.

Abstract

In rural African communities, family caregivers shoulder the responsibility of caring for loved ones with mental disorders, often without professional support. This qualitative explorative study, conducted in Limpopo Province, South Africa, aimed to explore the realities of caring for a family member with a mental disorder in rural and remote Capricorn District, in order to uncover insights that can inform support systems, the academic community, interventions, and policies. Non-probability purposive sampling was used to ensure the reproducibility and validity of the results by focusing on participants who are actively involved in caregiving, living in the rural and remote of Capricorn District, in order to provide a comprehensive understanding of their experiences, and this resulted in 15 participants (13 females, 2 males). Data saturation determined the sample size, with data collected through in-depth interviews and analyzed using Tesch's open-coding method. The findings revealed that cultural and spiritual beliefs strengthen caregivers, who exhibit resilience and resourcefulness, yet face financial strain, career setbacks, social isolation, and health declines. The study underscores the critical role of healthcare professionals in recognizing and addressing the challenges faced by family caregivers, while also advocating for the academic community to prioritize the development and dissemination of educational programs focused on safe and ethical coping strategies for caregivers and for policymakers to develop comprehensive mental health services that are accessible and culturally sensitive to rural and remote communities. This is essential because the well-being of caregivers directly influences the rehabilitation and community integration outcomes for individuals with mental disorders.

References

Silaule O, Adams F, Nkosi N . Health effects of caregiving and coping with severe mental disorders: A caregivers' experience. S Afr J Psychiatr. 2024; 30:2144. PMC: 11019034. DOI: 10.4102/sajpsychiatry.v30i0.2144. View

Sharif L, Basri S, Alsahafi F, Altaylouni M, Albugumi S, Banakhar M . An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia-A Qualitative Study. Int J Environ Res Public Health. 2020; 17(17). PMC: 7504338. DOI: 10.3390/ijerph17176405. View

Ozgonul M, Bademli K . Ethical problems experienced by family caregivers of patient with schizophrenia: A hermeneutic phenomenological study. Perspect Psychiatr Care. 2022; 58(4):2127-2136. DOI: 10.1111/ppc.13039. View

Marimbe B, Cowan F, Kajawu L, Muchirahondo F, Lund C . Perceived burden of care and reported coping strategies and needs for family caregivers of people with mental disorders in Zimbabwe. Afr J Disabil. 2017; 5(1):209. PMC: 5433451. DOI: 10.4102/ajod.v5i1.209. View

Pearlin L, Lieberman M, Menaghan E, Mullan J . The stress process. J Health Soc Behav. 1981; 22(4):337-56. View

Iseselo M, Kajula L, Yahya-Malima K . The psychosocial problems of families caring for relatives with mental illnesses and their coping strategies: a qualitative urban based study in Dar es Salaam, Tanzania. BMC Psychiatry. 2016; 16:146. PMC: 4867081. DOI: 10.1186/s12888-016-0857-y. View

Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B . Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018; 52(4):1893-1907. PMC: 5993836. DOI: 10.1007/s11135-017-0574-8. View

Janardhana N, Raghunandan S, Naidu D, Saraswathi L, Seshan V . Care giving of people with severe mental illness: an Indian experience. Indian J Psychol Med. 2015; 37(2):184-94. PMC: 4418252. DOI: 10.4103/0253-7176.155619. View

Charlson F, Diminic S, Lund C, Degenhardt L, Whiteford H . Mental and substance use disorders in Sub-Saharan Africa: predictions of epidemiological changes and mental health workforce requirements for the next 40 years. PLoS One. 2014; 9(10):e110208. PMC: 4195720. DOI: 10.1371/journal.pone.0110208. View

10.

Silaule O, Nkosi N, Adams F . Extent of caregiver burden among informal caregivers of persons with severe mental disorders in rural South Africa. Rural Remote Health. 2023; 23(2):7509. DOI: 10.22605/RRH7509. View

11.

LHeureux T, Parmar J, Dobbs B, Charles L, Tian P, Sacrey L . Rural Family Caregiving: A Closer Look at the Impacts of Health, Care Work, Financial Distress, and Social Loneliness on Anxiety. Healthcare (Basel). 2022; 10(7). PMC: 9318565. DOI: 10.3390/healthcare10071155. View

12.

Ong H, Fernandez P, Lim H . Family engagement as part of managing patients with mental illness in primary care. Singapore Med J. 2021; 62(5):213-219. PMC: 8801858. DOI: 10.11622/smedj.2021057. View

13.

Ndlovu J, Mokwena K . Burden of Care of Family Caregivers for People Diagnosed with Serious Mental Disorders in a Rural Health District in Kwa-Zulu-Natal, South Africa. Healthcare (Basel). 2023; 11(19). PMC: 10572910. DOI: 10.3390/healthcare11192686. View

14.

Ntsayagae E, Poggenpoel M, Myburgh C . Experiences of family caregivers of persons living with mental illness: A meta-synthesis. Curationis. 2019; 42(1):e1-e9. PMC: 6779982. DOI: 10.4102/curationis.v42i1.1900. View

15.

Jack-Ide I, Uys L, Middleton L . Caregiving experiences of families of persons with serious mental health problems in the Niger Delta region of Nigeria. Int J Ment Health Nurs. 2012; 22(2):170-9. DOI: 10.1111/j.1447-0349.2012.00853.x. View

16.

Shamsaei F, Cheraghi F, Esmaeilli R . The Family Challenge of Caring for the Chronically Mentally Ill: A Phenomenological Study. Iran J Psychiatry Behav Sci. 2015; 9(3):e1898. PMC: 4644616. DOI: 10.17795/ijpbs-1898. View