Continuity of Operations in Newborn Screening: Lessons Learned from Three Incidents

Overview

Journal Int J Neonatal Screen

Date 2024 Aug 27

PMID 39189227

Authors

M Christine Dorley

Elizabeth Bair

Patricia Ryland

Amanda D Ingram

Emily Reeves

Kara J Levinson

Ona O Adair

Jenny F Meredith

Susanne Crowe

Affiliations

Soon will be listed here.

Abstract

Three incidents that impacted two US newborn screening (NBS) programs highlight the importance of contingency planning for the continuity of operations (COOP). Other NBS programs may benefit from the experience of these state programs for their own contingency planning efforts. Through after-action reviews conducted post-incident, crucial elements for the successful management of an incident were identified. We detailed the strengths, weaknesses, improvements needed, and future actions that will assist in preparing for other incidents as lessons learned.

References

Ned-Sykes R, Pentella M, Kurimski L, Zanto S, Charles E, Bean C . Regional Consortia: A Framework for Public Health Laboratory Collaboration and Service Sharing. Public Health Rep. 2021; 137(2):190-196. PMC: 8900239. DOI: 10.1177/00333549211002774. View

Powell C . What is Newborn Screening?. N C Med J. 2019; 80(1):32-36. DOI: 10.18043/ncm.80.1.32. View

Mlinaric M, Bonham J, Kozich V, Kolker S, Majek O, Battelino T . Newborn Screening in a Pandemic-Lessons Learned. Int J Neonatal Screen. 2023; 9(2). PMC: 10123726. DOI: 10.3390/ijns9020021. View

Andersson H, Perry W, Bowdish B, Floyd-Browning P . Emergency preparedness for genetics centers, laboratories, and patients: the Southeast Region Genetics Collaborative strategic plan. Genet Med. 2011; 13(10):903-7. DOI: 10.1097/GIM.0b013e31821fea08. View

Pickens C, Sternberg M, Seeterlin M, De Jesus V, Morrissey M, Manning A . Harmonizing Newborn Screening Laboratory Proficiency Test Results Using the CDC NSQAP Reference Materials. Int J Neonatal Screen. 2020; 6(3):75. PMC: 7570198. DOI: 10.3390/ijns6030075. View

Goldberg B, Hall J, Pham P, Cho C . Text messages by wireless mesh network vs voice by two-way radio in disaster simulations: A crossover randomized-controlled trial. Am J Emerg Med. 2021; 48:148-155. DOI: 10.1016/j.ajem.2021.04.004. View

Therrell Jr B, Schwartz M, Southard C, Williams D, Hannon W, Mann M . Newborn Screening System Performance Evaluation Assessment Scheme (PEAS). Semin Perinatol. 2010; 34(2):105-20. DOI: 10.1053/j.semperi.2009.12.002. View

Lobato M, Yanni E, Hagar A, Myers C, Rue A, Evans C . Impact of Hurricane Katrina on newborn screening in Louisiana. Pediatrics. 2007; 120(4):e749-55. DOI: 10.1542/peds.2006-3616. View

Pass K, Thoene J, Watson M . Emergency preparedness for newborn screening and genetic services. Genet Med. 2009; 11(6):455-64. DOI: 10.1097/GIM.0b013e3181a959c1. View

10.

Downs S, van Dyck P, Rinaldo P, McDonald C, Howell R, Zuckerman A . Improving newborn screening laboratory test ordering and result reporting using health information exchange. J Am Med Inform Assoc. 2010; 17(1):13-8. PMC: 2995628. DOI: 10.1197/jamia.M3295. View

11.

Greaves R, Pitt J, McGregor C, Wall M, Christodoulou J . Newborn bloodspot screening in the time of COVID-19. Genet Med. 2021; 23(6):1143-1150. PMC: 7804212. DOI: 10.1038/s41436-020-01086-6. View

12.

Charlton C, Hull N, Sloma C, Bonifas M, Johnson M, Strain A . How To Prepare for the Unexpected: a Public Health Laboratory Response. Clin Microbiol Rev. 2021; 34(3). PMC: 8142518. DOI: 10.1128/CMR.00183-20. View

13.

Dorley M, Dizikes G, Pickens C, Cuthbert C, Basheeruddin K, Gulamali-Majid F . Harmonization of Newborn Screening Results for Pompe Disease and Mucopolysaccharidosis Type I. Int J Neonatal Screen. 2023; 9(1). PMC: 10059896. DOI: 10.3390/ijns9010011. View

14.

Floyd-Browning P, Perry W, Andersson H . Newborn screening: a national snapshot with implications for emergency preparedness. J Pediatr. 2012; 162(5):955-7.e1-2. DOI: 10.1016/j.jpeds.2012.10.058. View

15.

Jorgensen A, Mendoza G, Henderson J . Emergency preparedness and disaster response core competency set for perinatal and neonatal nurses. J Obstet Gynecol Neonatal Nurs. 2010; 39(4):450-65, quiz 465-7. DOI: 10.1111/j.1552-6909.2010.01157.x. View