"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders

Overview

Journal Can J Occup Ther

Specialties Occupational Medicine
Rehabilitation Medicine

Date 2023 Aug 9

PMID 37554061

Authors

Evelina Pituch

Rym Ben Lagha

Marjorie Aunos

Tiffanie Cormier

Annie Carrier

Cynthia Gagnon

Veronique Gilbert

Aysha Dominique

Antoine Duquette

Marie Turcotte

Rose-Marie Wakil

Carolina Bottari

Affiliations

Soon will be listed here.

Abstract

Knowledge about the needs of parents with neurological disorders who take care of young children is limited. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Focus groups and individual interviews with parents ( = 8), spouses ( = 5), rehabilitation clinicians ( = 8), community partners ( = 7), and researchers ( = 7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.

Citing Articles

Occupational Therapy for Parenting: Perspectives of Parents With Physical Disability.

Honey A, Peterson J, OMara V, McGrath M Occup Ther Int. 2024; 2024:4854903.

PMID: 39184065 PMC: 11343624. DOI: 10.1155/2024/4854903.

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