Family Resilience Processes Among Guardians Caring for Children and Youths with Leukemia

Overview

Journal Heliyon

Specialty Social Sciences

Date 2023 Jul 6

PMID 37408892

Authors

Surangkana Suparit

Nanchatsan Sakunpong

Thasuk Junprasert

Affiliations

Soon will be listed here.

Abstract

Based on Walsh's concept of family resilience, this study aims to explain the processes and factors related to family resilience of guardians caring for children and youths with leukemia (GCYL) at a university-affiliated hospital in central Thailand. An explanatory case study is conducted. Semi-structured in-depth interviews were conducted with 21 guardians from 15 families caring for children and youths with leukemia (CYL). The interviews were recorded and transcribed for content analysis. The researcher categorized and coded the data to summarize, interpret, and validate the key study results of family resilience. This study found that families undergo three phases when facing the situation: pre-family resilience, family resilience, and post-family resilience. In each phase, these families face changes in emotions, perspectives, and behaviors related to the factors promoting family resilience. The results of this study will benefit multidisciplinary teams providing care for families with CYL by applying the information about family resilience processes to provide services that cultivate behavioral, physical, psychological, and social growth for the families and enable them to maintain peace in family life.

References

Board R . Father stress during a child's critical care hospitalization. J Pediatr Health Care. 2004; 18(5):244-9. DOI: 10.1016/j.pedhc.2004.06.003. View

Tackett A, Cushing C, Suorsa K, Mullins A, Gamwell K, Mayes S . Illness Uncertainty, Global Psychological Distress, and Posttraumatic Stress in Pediatric Cancer: A Preliminary Examination Using a Path Analysis Approach. J Pediatr Psychol. 2015; 41(3):309-18. DOI: 10.1093/jpepsy/jsv093. View

Li Y, Qiao Y, Luan X, Li S, Wang K . Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers. Eur J Cancer Care (Engl). 2019; 28(2):e12984. DOI: 10.1111/ecc.12984. View

Chang Y, Hsu M, Ouyang W . Effects of Integrated Workplace Violence Management Intervention on Occupational Coping Self-Efficacy, Goal Commitment, Attitudes, and Confidence in Emergency Department Nurses: A Cluster-Randomized Controlled Trial. Int J Environ Res Public Health. 2022; 19(5). PMC: 8910583. DOI: 10.3390/ijerph19052835. View

Cohn L, Pechlivanoglou P, Lee Y, Mahant S, Orkin J, Marson A . Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis. J Pediatr. 2020; 218:166-177.e2. DOI: 10.1016/j.jpeds.2019.10.068. View

Franck L, McQuillan A, Wray J, Grocott M, Goldman A . Parent stress levels during children's hospital recovery after congenital heart surgery. Pediatr Cardiol. 2010; 31(7):961-8. DOI: 10.1007/s00246-010-9726-5. View

Juthavantana J, Sakunpong N, Prasertsin U, Charupheng M, Lau S . An integrative counselling program to promote active ageing for older people in Thai nursing homes: an intervention mixed methods design. BMC Psychol. 2021; 9(1):14. PMC: 7836191. DOI: 10.1186/s40359-021-00519-4. View

Mishel M . Uncertainty in illness. Image J Nurs Sch. 1988; 20(4):225-32. DOI: 10.1111/j.1547-5069.1988.tb00082.x. View

Liu P, Yin P, Zhu Y, Zhang S, Sheng G . The Correlation of Family Resilience with Sleep Quality and Depression of Parents of Children with Epilepsy. J Pediatr Nurs. 2020; 56:e49-e54. DOI: 10.1016/j.pedn.2020.07.016. View

10.

Sun J, Wang X, Wang Y, Du X, Zhang C . The mediating effect of perceived social support on the relationship between mindfulness and burnout in special education teachers. J Community Psychol. 2019; 47(7):1799-1809. DOI: 10.1002/jcop.22229. View

11.

Gordon J . An evidence-based approach for supporting parents experiencing chronic sorrow. Pediatr Nurs. 2009; 35(2):115-9. View

12.

Walsh F . Applying a Family Resilience Framework in Training, Practice, and Research: Mastering the Art of the Possible. Fam Process. 2016; 55(4):616-632. DOI: 10.1111/famp.12260. View

13.

Chen C, Du B, Ho C, Ou W, Chang Y, Chen W . Perceived Stress, Parent-Adolescent/Young Adult Communication, and Family Resilience Among Adolescents/Young Adults Who Have a Parent With Cancer in Taiwan: A Longitudinal Study. Cancer Nurs. 2017; 41(2):100-108. DOI: 10.1097/NCC.0000000000000488. View

14.

Witt W, Litzelman K, Wisk L, Spear H, Catrine K, Levin N . Stress-mediated quality of life outcomes in parents of childhood cancer and brain tumor survivors: a case-control study. Qual Life Res. 2010; 19(7):995-1005. PMC: 3057223. DOI: 10.1007/s11136-010-9666-9. View

15.

Walsh F . The concept of family resilience: crisis and challenge. Fam Process. 1996; 35(3):261-81. DOI: 10.1111/j.1545-5300.1996.00261.x. View

16.

Meltzer L, Sanchez-Ortuno M, Edinger J, Avis K . Sleep patterns, sleep instability, and health related quality of life in parents of ventilator-assisted children. J Clin Sleep Med. 2014; 11(3):251-8. PMC: 4346646. DOI: 10.5664/jcsm.4538. View

17.

Aldridge M . Decreasing parental stress in the pediatric intensive care unit: one unit's experience. Crit Care Nurse. 2005; 25(6):40-50. View

18.

Westergaard M, Lau C, Allesoe K, Andreasen A, Jensen R . Poor social support and loneliness in chronic headache: Prevalence and effect modifiers. Cephalalgia. 2021; 41(13):1318-1331. DOI: 10.1177/03331024211020392. View

19.

Franich-Ray C, Bright M, Anderson V, Northam E, Cochrane A, Menahem S . Trauma reactions in mothers and fathers after their infant's cardiac surgery. J Pediatr Psychol. 2013; 38(5):494-505. DOI: 10.1093/jpepsy/jst015. View

20.

Matel-Anderson D, Bekhet A, Garnier-Villarreal M . Mediating Effects of Positive Thinking and Social Support on Suicide Resilience. West J Nurs Res. 2018; 41(1):25-41. DOI: 10.1177/0193945918757988. View