Do Online Decision Aids Reflect New Prenatal Screening and Testing Options? An Environmental Scan and Content Analysis

Overview

Journal PEC Innov

Specialty Health Services

Date 2023 May 22

PMID 37213778

Authors

Jessica Yu Ting Lu

Shannon McKinn

Lucinda Freeman

Erin Turbitt

Carissa Bonner

Affiliations

Soon will be listed here.

Abstract

Objective: Decision aids have been developed to help prospective parents make informed, shared decisions about medical tests, but these options are rapidly changing. This study aimed to identify and evaluate publicly available decision aids written in English for prospective parents seeking prenatal test information.

Methods: A systematic review process was followed using 3 sources: known decision aid repositories, fetal medicine organisations and Google. The search, screening process, quality assessment, and data extraction was performed by two independent researchers. The quality assessment of the decision aids was based on the International Patient Decision Aids Standards (IPDAS v.4.0).

Results: We identified 13 decision aids, which varied in the screening and diagnostic tests that they discussed. No decision aid met all the IPDAS v.4.0. criteria and no decision aid reported updated risk of miscarriage for amniocentesis and chorionic villus sampling (CVS). There was a lack of decision aids for some common decisions in the prenatal context.

Conclusion: We identified outdated content in current prenatal decision aids. The findings will inform healthcare professionals of the quality of current prenatal decision aids, which may facilitate their patients' informed decision-making about prenatal tests.

Innovation: Considerations for improving future decision aids are outlined.

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