Bringing Lived Experience to Research on Health and Homelessness: Perspectives of Researchers and Lived Experience Partners

Overview

Journal Community Ment Health J

Specialty Health Services

Date 2023 May 19

PMID 37204566

Authors

Howard Padwa

Benjamin F Henwood

Roya Ijadi-Maghsoodi

Bikki Tran-Smith

Anna Darby

Ricky Bluthenthal

Melissa Chinchilla

Katherine Diaz Vickery

Randall Kuhn

Alexander Lawton

Ena Fenderson

Elvin Galarza

Anthony Haynes

Dennis King

Emily Martiniuk

Pamela Marshall

Sonny Mendoza

Theodore Patton

Suzette Shaw

Reba Stevens

Lillian Gelberg

Affiliations

Soon will be listed here.

Abstract

Improving health and healthcare for people experiencing homelessness (PEH) has become a national research priority. It is critical for research related to homelessness to be guided by input from PEH themselves. We are a group of researchers and individuals who have personally experienced homelessness collaborating on a study focused on homelessness and housing. In this Fresh Focus, we describe our partnership, lessons learned from our work together, what we have gained from our collaboration, and considerations for future homelessness research-lived experience partnerships.

Citing Articles

Addressing opioid misuse through community-engaged strategy development: study protocol of a randomized controlled trial.

Zimmerman E, Rafie C, Wenzel S, Hosig K, Villani D, Dance J Res Involv Engagem. 2024; 10(1):74.

PMID: 39030561 PMC: 11264802. DOI: 10.1186/s40900-024-00612-z.

References

Baggett T, OConnell J, Singer D, Rigotti N . The unmet health care needs of homeless adults: a national study. Am J Public Health. 2010; 100(7):1326-33. PMC: 2882397. DOI: 10.2105/AJPH.2009.180109. View

Brown R, Kiely D, Bharel M, Mitchell S . Geriatric syndromes in older homeless adults. J Gen Intern Med. 2011; 27(1):16-22. PMC: 3250555. DOI: 10.1007/s11606-011-1848-9. View

Fazel S, Khosla V, Doll H, Geddes J . The prevalence of mental disorders among the homeless in western countries: systematic review and meta-regression analysis. PLoS Med. 2008; 5(12):e225. PMC: 2592351. DOI: 10.1371/journal.pmed.0050225. View

Fletcher E, Gabrielian S, Brown L, Gough J, Ijadi-Maghsoodi R, Kalofonos I . Lessons Learned by Collaborating with Structurally Vulnerable Veterans via a Veterans Engagement Group. J Gen Intern Med. 2022; 37(Suppl 1):109-112. PMC: 8960678. DOI: 10.1007/s11606-021-07075-y. View

Gelberg L, Linn L . Differences in health status between older and younger homeless adults. J Am Geriatr Soc. 1990; 38(11):1220-9. DOI: 10.1111/j.1532-5415.1990.tb01503.x. View

Hamilton A, Poza I, Washington D . "Homelessness and trauma go hand-in-hand": pathways to homelessness among women veterans. Womens Health Issues. 2011; 21(4 Suppl):S203-9. DOI: 10.1016/j.whi.2011.04.005. View

Harris T, Rhoades H, Duan L, Wenzel S . Mental health change in the transition to permanent supportive housing: The role of housing and social networks. J Community Psychol. 2019; 47(8):1834-1849. DOI: 10.1002/jcop.22230. View

Jones A, Hausmann L, Haas G, Mor M, Cashy J, Schaefer J . A national evaluation of homeless and nonhomeless veterans' experiences with primary care. Psychol Serv. 2017; 14(2):174-183. PMC: 6121704. DOI: 10.1037/ser0000116. View

Jones A, Hausmann L, Kertesz S, Suo Y, Cashy J, Mor M . Differences in Experiences With Care Between Homeless and Nonhomeless Patients in Veterans Affairs Facilities With Tailored and Nontailored Primary Care Teams. Med Care. 2018; 56(7):610-618. DOI: 10.1097/MLR.0000000000000926. View

10.

Manning R, Greenwood R . Recovery in homelessness: The influence of choice and mastery on physical health, psychiatric symptoms, alcohol and drug use, and community integration. Psychiatr Rehabil J. 2019; 42(2):147-157. DOI: 10.1037/prj0000350. View

11.

Mejia-Lancheros C, Lachaud J, OCampo P, Wiens K, Nisenbaum R, Wang R . Trajectories and mental health-related predictors of perceived discrimination and stigma among homeless adults with mental illness. PLoS One. 2020; 15(2):e0229385. PMC: 7046214. DOI: 10.1371/journal.pone.0229385. View

12.

Pilla D, Park-Taylor J . "Halfway Independent": Experiences of formerly homeless adults living in permanent supportive housing. J Community Psychol. 2021; 50(3):1411-1429. DOI: 10.1002/jcop.22724. View

13.

Poremski D, Stergiopoulos V, Braithwaite E, Distasio J, Nisenbaum R, Latimer E . Effects of Housing First on Employment and Income of Homeless Individuals: Results of a Randomized Trial. Psychiatr Serv. 2016; 67(6):603-9. DOI: 10.1176/appi.ps.201500002. View

14.

Rafie C, Zimmerman E, Moser D, Cook S, Zarghami F . A lung cancer research agenda that reflects the diverse perspectives of community stakeholders: process and outcomes of the SEED method. Res Involv Engagem. 2019; 5:3. PMC: 6330432. DOI: 10.1186/s40900-018-0134-y. View

15.

Selby J, Beal A, Frank L . The Patient-Centered Outcomes Research Institute (PCORI) national priorities for research and initial research agenda. JAMA. 2012; 307(15):1583-4. DOI: 10.1001/jama.2012.500. View

16.

Strehlau V, Torchalla I, Patterson M, Moniruzzaman A, Laing A, Addorisio S . Recruitment and retention of homeless individuals with mental illness in a housing first intervention study. Contemp Clin Trials Commun. 2018; 7:48-56. PMC: 5898561. DOI: 10.1016/j.conctc.2017.05.001. View

17.

Tsai J, Schick V, Hernandez B, Pietrzak R . Is homelessness a traumatic event? Results from the 2019-2020 National Health and Resilience in Veterans Study. Depress Anxiety. 2020; 37(11):1137-1145. DOI: 10.1002/da.23098. View

18.

Vickery K, Winkelman T, Ford B, Busch A, Robertshaw D, Pittman B . Trends in Trimorbidity Among Adults Experiencing Homelessness in Minnesota, 2000-2018. Med Care. 2021; 59(Suppl 2):S220-S227. PMC: 7958979. DOI: 10.1097/MLR.0000000000001435. View

19.

Zimmerman E, Cook S, Haley A, Woolf S, Price S . A Patient and Provider Research Agenda on Diabetes and Hypertension Management. Am J Prev Med. 2017; 53(1):123-129. PMC: 6979736. DOI: 10.1016/j.amepre.2017.01.034. View