Exploration of the Strategies of Iranian Nurses in Providing Palliative Care to Children with Cancer: A Qualitative Study

Overview

Journal Florence Nightingale J Nurs

Publisher Aves

Specialty Medical Education

Date 2023 May 10

PMID 37162048

Authors

Zahra Ebadinejad

Maryam Rassouli

Ali Fakhr Movahedi

Affiliations

Soon will be listed here.

Abstract

Aim: This study aimed to explain the strategies of Iranian nurses in providing palliative care to children with cancer.

Method: This study is a qualitative research with an approach to the conventional content analysis. The main participants were nine nurses working in ward pediatric oncology. Also based on data analysis, five parents of children, two children, one social worker, one physician, one psychologist, and one nutritionist were also included. Data were collected through semi-structured interviews and observation and were analyzed by the Elo and Kyngäs approach. Lincoln and Guba criteria were used for the trustworthiness of data analysis.

Results: Three conceptual categories were developed with qualitative analysis: "prevention and relief of pain and physical symptoms", "spontaneous compassion", and "strengthen parental resilience"; that were derived from the main categories: "attention to precautionary considerations," "friendly relationship of nurses with parents of children, create enjoyable moments, spontaneous assistance," "facilitate coping with current situation, perceived confrontation with child death."

Conclusion: In this study, the results showed that nurses' strategies in providing palliative care to children with cancer were a combination of professional and spontaneous strategies.

References

Elo S, Kyngas H . The qualitative content analysis process. J Adv Nurs. 2008; 62(1):107-15. DOI: 10.1111/j.1365-2648.2007.04569.x. View

Soares V, Silva L, Cursino E, Goes F . [The use of playing by the nursing staff on palliative care for children with cancer]. Rev Gaucha Enferm. 2014; 35(3):111-6. DOI: 10.1590/1983-1447.2014.03.43224. View

Snaman J, Kaye E, Baker J, Wolfe J . Pediatric palliative oncology: the state of the science and art of caring for children with cancer. Curr Opin Pediatr. 2017; 30(1):40-48. DOI: 10.1097/MOP.0000000000000573. View

Hsieh H, Shannon S . Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9):1277-88. DOI: 10.1177/1049732305276687. View

Compas B, Desjardins L, Vannatta K, Young-Saleme T, Rodriguez E, Dunn M . Children and adolescents coping with cancer: self- and parent reports of coping and anxiety/depression. Health Psychol. 2014; 33(8):853-61. PMC: 4241756. DOI: 10.1037/hea0000083. View

Sposito A, Silva-Rodrigues F, Sparapani V, Pfeifer L, Lima R, Nascimento L . Coping strategies used by hospitalized children with cancer undergoing chemotherapy. J Nurs Scholarsh. 2015; 47(2):143-51. DOI: 10.1111/jnu.12126. View

Ogelby M, Goldstein R . Interdisciplinary care: using your team. Pediatr Clin North Am. 2014; 61(4):823-34. DOI: 10.1016/j.pcl.2014.04.009. View

Sabeti F, Mohammadpour M, Pouraboli B, Tahmasebi M, Hasanpour M . Health Care Providers' Experiences of the Non-Pharmacological Pain and Anxiety Management and Its Barriers in the Pediatric Intensive Care Units. J Pediatr Nurs. 2021; 60:e110-e116. DOI: 10.1016/j.pedn.2021.07.026. View

Campbell S . What is qualitative research?. Clin Lab Sci. 2014; 27(1):3. View

10.

Ranallo L . Improving the Quality of End-of-Life Care in Pediatric Oncology Patients Through the Early Implementation of Palliative Care. J Pediatr Oncol Nurs. 2017; 34(6):374-380. DOI: 10.1177/1043454217713451. View

11.

van der Geest I, Darlington A, Streng I, Michiels E, Pieters R, van den Heuvel-Eibrink M . Parents' experiences of pediatric palliative care and the impact on long-term parental grief. J Pain Symptom Manage. 2013; 47(6):1043-53. DOI: 10.1016/j.jpainsymman.2013.07.007. View

12.

Williams-Reade J, Lamson A, Knight S, White M, Ballard S, Desai P . Paediatric palliative care: a review of needs, obstacles and the future. J Nurs Manag. 2013; 23(1):4-14. DOI: 10.1111/jonm.12095. View

13.

Johnston E, Molina J, Martinez I, Dionne-Odom J, Currie E, Crowl T . Bereaved parents' views on end-of-life care for children with cancer: Quality marker implications. Cancer. 2020; 126(14):3352-3359. DOI: 10.1002/cncr.32935. View

14.

Gysels M, Evans N, Menaca A, Andrew E, Toscani F, Finetti S . Culture and end of life care: a scoping exercise in seven European countries. PLoS One. 2012; 7(4):e34188. PMC: 3317929. DOI: 10.1371/journal.pone.0034188. View

15.

Aghaei M, Vanaki Z, Mohammadi E . Inducing a sense of worthiness in patients: the basis of patient-centered palliative care for cancer patients in Iran. BMC Palliat Care. 2021; 20(1):38. PMC: 7927376. DOI: 10.1186/s12904-021-00732-3. View

16.

Docherty S, Thaxton C, Allison C, Barfield R, Tamburro R . The nursing dimension of providing palliative care to children and adolescents with cancer. Clin Med Insights Pediatr. 2013; 6:75-88. PMC: 3620813. DOI: 10.4137/CMPed.S8208. View

17.

Ferrell B, Otis-Green S, Economou D . Spirituality in cancer care at the end of life. Cancer J. 2013; 19(5):431-7. DOI: 10.1097/PPO.0b013e3182a5baa5. View

18.

Koch K, Jones B . Supporting Parent Caregivers of Children with Life-Limiting Illness. Children (Basel). 2018; 5(7). PMC: 6069074. DOI: 10.3390/children5070085. View

19.

Butler A, Hall H, Willetts G, Copnell B . Parents' experiences of healthcare provider actions when their child dies: an integrative review of the literature. J Spec Pediatr Nurs. 2014; 20(1):5-20. DOI: 10.1111/jspn.12097. View

20.

Borneman T, Sun V, Williams A, Fujinami R, Del Ferraro C, Burhenn P . Support for Patients and Family Caregivers in Lung Cancer: Educational Components of an Interdisciplinary Palliative Care Intervention. J Hosp Palliat Nurs. 2015; 17(4):309-318. PMC: 4669097. DOI: 10.1097/NJH.0000000000000165. View