Design and Implementation of a Global Site Assessment Survey Among HIV Clinics Participating in the International Epidemiology Databases to Evaluate AIDS (IeDEA) Research Consortium

Overview

Journal PLoS One

Specialties General Medicine
Science

Date 2023 Mar 14

PMID 36917598

Authors

Ellen Brazier

Fernanda Maruri

C William Wester

Beverly Musick

Aimee Freeman

Angela Parcesepe

Stefanie Hossmann

Benedikt Christ

April Kimmel

John Humphrey

Esther Freeman

Leslie A Enane

Kathryn E Lancaster

Marie Ballif

Jonathan E Golub

Denis Nash

Stephany N Duda

Affiliations

Soon will be listed here.

Abstract

Introduction: Timely descriptions of HIV service characteristics and their evolution over time across diverse settings are important for monitoring the scale-up of evidence-based program strategies, understanding the implementation landscape, and examining service delivery factors that influence HIV care outcomes.

Methods: The International epidemiology Databases to Evaluate AIDS (IeDEA) consortium undertakes periodic cross-sectional surveys on service availability and care at participating HIV treatment sites to characterize trends and inform the scientific agenda for HIV care and implementation science communities. IeDEA's 2020 general site assessment survey was developed through a consultative, 18-month process that engaged diverse researchers in identifying content from previous surveys that should be retained for longitudinal analyses and in developing expanded and new content to address gaps in the literature. An iterative review process was undertaken to standardize the format of new survey questions and align them with best practices in survey design and measurement and lessons learned through prior IeDEA site assessment surveys.

Results: The survey questionnaire developed through this process included eight content domains covered in prior surveys (patient population, staffing and community linkages, HIV testing and diagnosis, new patient care, treatment monitoring and retention, routine HIV care and screening, pharmacy, record-keeping and patient tracing), along with expanded content related to antiretroviral therapy (differentiated service delivery and roll-out of dolutegravir-based regimens); mental health and substance use disorders; care for pregnant/postpartum women and HIV-exposed infants; tuberculosis preventive therapy; and pediatric/adolescent tuberculosis care; and new content related to Kaposi's sarcoma diagnostics, the impact of COVID-19 on service delivery, and structural barriers to HIV care. The survey was distributed to 238 HIV treatment sites in late 2020, with a 95% response rate.

Conclusion: IeDEA's approach for site survey development has broad relevance for HIV research networks and other priority health conditions.

Citing Articles

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Service delivery challenges in HIV care during the first year of the COVID-19 pandemic: results from a site assessment survey across the global IeDEA consortium.

Brazier E, Ajeh R, Maruri F, Musick B, Freeman A, Wester C J Int AIDS Soc. 2022; 25(12):e26036.

PMID: 36504431 PMC: 9742047. DOI: 10.1002/jia2.26036.

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