Perceived Social Support, Normalization, and Subjective Well-Being Among Family Members of a Child with Autism Spectrum Disorder

Overview

Journal J Autism Dev Disord

Publisher Springer

Date 2023 Jan 13

PMID 36637591

Authors

Liat Hamama

Affiliations

Soon will be listed here.

Abstract

The experience of family members of children with autism spectrum disorder (ASD) is not uniform. This study focused on mothers of a child with ASD (Study 1) and typically developing siblings (TDSs) during their emerging adulthood (Study 2). Similarities and differences were explored regarding a proposed model examining the paths of perceived social support (PSS) and normalization (a coping strategy) with subjective well-being: satisfaction with life (SWL) and positive affect (PA). Similarities were found in the paths between PSS, normalization, and SWL, in mothers and TDSs, but differences emerged regarding PA. These findings highlight the importance of PSS as a resource that contributes to normalization and SWL. Professional awareness of family members' PSS and their engagement in normalization is needed.

Citing Articles

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study.

Hamama L, Hamama-Raz Y, Lebowitz-Sokolover K, Ganelin-Cohen E Front Psychol. 2024; 15:1308141.

PMID: 38356769 PMC: 10865376. DOI: 10.3389/fpsyg.2024.1308141.

References

Anderson R, Walburn J, Morgan M . Approaches to Photoprotection and Normalization in Highly Adherent Families of Children With Xeroderma Pigmentosum in the United Kingdom. Qual Health Res. 2019; 30(8):1275-1286. DOI: 10.1177/1049732319826561. View

Arnett J . Emerging adulthood. A theory of development from the late teens through the twenties. Am Psychol. 2000; 55(5):469-80. View

Bandura A . Toward a Psychology of Human Agency. Perspect Psychol Sci. 2015; 1(2):164-80. DOI: 10.1111/j.1745-6916.2006.00011.x. View

Barker E, Hartley S, Seltzer M, Floyd F, Greenberg J, Orsmond G . Trajectories of emotional well-being in mothers of adolescents and adults with autism. Dev Psychol. 2010; 47(2):551-61. PMC: 3074104. DOI: 10.1037/a0021268. View

Bayat M . Evidence of resilience in families of children with autism. J Intellect Disabil Res. 2007; 51(Pt 9):702-14. DOI: 10.1111/j.1365-2788.2007.00960.x. View

Benyamini Y, Blumstein T, Lusky A, Modan B . Gender differences in the self-rated health-mortality association: is it poor self-rated health that predicts mortality or excellent self-rated health that predicts survival?. Gerontologist. 2003; 43(3):396-405; discussion 372-5. DOI: 10.1093/geront/43.3.396. View

Benyamini Y, Gozlan M, Weissman A . Normalization as a Strategy for Maintaining Quality of Life While Coping with Infertility in a Pronatalist Culture. Int J Behav Med. 2017; 24(6):871-879. DOI: 10.1007/s12529-017-9656-1. View

Cebula K . Applied behavior analysis programs for autism: sibling psychosocial adjustment during and following intervention use. J Autism Dev Disord. 2011; 42(5):847-62. DOI: 10.1007/s10803-011-1322-x. View

Cohen S, Wills T . Stress, social support, and the buffering hypothesis. Psychol Bull. 1985; 98(2):310-57. View

10.

Deatrick J, Knafl K . Clarifying the concept of normalization. Image J Nurs Sch. 1999; 31(3):209-14. DOI: 10.1111/j.1547-5069.1999.tb00482.x. View

11.

Diener E . Subjective well-being. Psychol Bull. 1984; 95(3):542-75. View

12.

Diener E, Emmons R, Larsen R, Griffin S . The Satisfaction With Life Scale. J Pers Assess. 1985; 49(1):71-5. DOI: 10.1207/s15327752jpa4901_13. View

13.

Ekas N, Lickenbrock D, Whitman T . Optimism, social support, and well-being in mothers of children with autism spectrum disorder. J Autism Dev Disord. 2010; 40(10):1274-84. DOI: 10.1007/s10803-010-0986-y. View

14.

Emiliani F, Bertocchi S, Poti S, Palareti L . Process of normalization in families with children affected by hemophilia. Qual Health Res. 2011; 21(12):1667-78. DOI: 10.1177/1049732311417456. View

15.

Fredrickson B . What Good Are Positive Emotions?. Rev Gen Psychol. 2011; 2(3):300-319. PMC: 3156001. DOI: 10.1037/1089-2680.2.3.300. View

16.

Fredrickson B, Cohn M, Coffey K, Pek J, Finkel S . Open hearts build lives: positive emotions, induced through loving-kindness meditation, build consequential personal resources. J Pers Soc Psychol. 2008; 95(5):1045-1062. PMC: 3156028. DOI: 10.1037/a0013262. View

17.

Garcia-Lopez C, Sarria E, Pozo P, Recio P . Supportive Dyadic Coping and Psychological Adaptation in Couples Parenting Children with Autism Spectrum Disorder: The Role of Relationship Satisfaction. J Autism Dev Disord. 2016; 46(11):3434-3447. DOI: 10.1007/s10803-016-2883-5. View

18.

Garrido D, Carballo G, Garcia-Retamero R . Siblings of children with autism spectrum disorders: social support and family quality of life. Qual Life Res. 2020; 29(5):1193-1202. DOI: 10.1007/s11136-020-02429-1. View

19.

Gottlieb B, Bergen A . Social support concepts and measures. J Psychosom Res. 2010; 69(5):511-20. DOI: 10.1016/j.jpsychores.2009.10.001. View

20.

Gunzler D, Chen T, Wu P, Zhang H . Introduction to mediation analysis with structural equation modeling. Shanghai Arch Psychiatry. 2014; 25(6):390-4. PMC: 4054581. DOI: 10.3969/j.issn.1002-0829.2013.06.009. View