» Articles » PMID: 36611580

Religious Influences on the Experience of Family Carers of People with Dementia in a British Pakistani Muslim Community

Overview
Specialty Health Services
Date 2023 Jan 8
PMID 36611580
Authors
Affiliations
Soon will be listed here.
Abstract

This paper reports on a study that begins to address the paucity of research around the religious motivations of Muslim carers of family members with dementia. Seven carers were recruited for interviews from the British Pakistani Muslim community concentrated in the Midlands and North of England. Interview transcripts were analysed thematically using an iterative collaborative methodology. The findings suggested that the Muslim faith plays a pivotal role as a support mechanism for individual carers and their families, but the wider faith community and its leaders did not typically offer support and could impede access to external care. This was a result of cultural pressure and lack of awareness both among religious leaders and the community as a whole. The study concluded that the inequality in access to dementia services may be constructively addressed if service providers engage with these faith concerns in the community and religious leaders to meet the needs of Muslims of British Pakistani origin.

Citing Articles

What Works Well for People With Dementia and Their Supporters From South Asian, African and Caribbean Communities in the UK: A Narrative Synthesis Systematic Review and Expert Consultations.

McDermott O, Sobers T, Mukadam N, Lee A, Orrell M Int J Geriatr Psychiatry. 2025; 40(3):e70047.

PMID: 40011077 PMC: 11864919. DOI: 10.1002/gps.70047.


Understanding and Awareness of Dementia in the Pakistani-Origin Community of Stoke-on-Trent, UK: A Scenario-Based Interview Study.

Nazir N, Kevern P Healthcare (Basel). 2024; 12(2).

PMID: 38275532 PMC: 10815018. DOI: 10.3390/healthcare12020251.


Ethnic differences in parental experiences during the first six months after PICU discharge in Singapore: a qualitative study.

Poh P, Carey M, Manning J, Lee J, Latour J Front Pediatr. 2024; 11:1288507.

PMID: 38250591 PMC: 10796750. DOI: 10.3389/fped.2023.1288507.


Commonalities and Differences in the Experiences of Visible Minority Transnational Carer-Employees: A Qualitative Study.

Shahbaz R, Williams A, Sethi B, Wahoush O Int J Environ Res Public Health. 2023; 20(18).

PMID: 37754659 PMC: 10531478. DOI: 10.3390/ijerph20186800.

References
1.
Mukadam N, Cooper C, Livingston G . A systematic review of ethnicity and pathways to care in dementia. Int J Geriatr Psychiatry. 2010; 26(1):12-20. DOI: 10.1002/gps.2484. View

2.
Jotkowitz A, Clarfield A, Glick S . The care of patients with dementia: a modern Jewish ethical perspective. J Am Geriatr Soc. 2005; 53(5):881-4. DOI: 10.1111/j.1532-5415.2005.53271.x. View

3.
Dodd E, Pracownik R, Popel S, Collings S, Emmens T, Cheston R . Dementia services for people from Black, Asian and Minority Ethnic and White-British communities: Does a primary care based model contribute to equality in service provision?. Health Soc Care Community. 2020; 30(2):622-630. DOI: 10.1111/hsc.13167. View

4.
Pereira M, Abreu A, Rego D, Ferreira G, Lima S . Contributors and Moderators of Quality of Life in Caregivers of Alzheimer´s Disease Patients. Exp Aging Res. 2021; 47(4):357-372. DOI: 10.1080/0361073X.2021.1895594. View

5.
Herat-Gunaratne R, Cooper C, Mukadam N, Rapaport P, Leverton M, Higgs P . "In the Bengali Vocabulary, There Is No Such Word as Care Home": Caring Experiences of UK Bangladeshi and Indian Family Carers of People Living With Dementia at Home. Gerontologist. 2019; 60(2):331-339. DOI: 10.1093/geront/gnz120. View