The Impact of Inflammatory Bowel Disease Related Fatigue on Health-Related Quality of Life: a Qualitative Semi-structured Interview Study

Overview

Journal J Res Nurs

Publisher Sage Publications

Specialty Nursing

Date 2022 Dec 19

PMID 36530749

Authors

Shellie J Radford

Gordon W Moran

Wladyslawa Czuber-Dochan

Affiliations

Soon will be listed here.

Abstract

Background: Fatigue is a frequently reported symptom of Inflammatory Bowel Disease (IBD), having a negative impact on Health-Related Quality of Life (HRQoL). Patients' experiences of this have not been researched in IBD.

Methods: Semi-structured interviews were conducted with adults with Crohn's Disease from out-patient clinics in the United Kingdom. Interviews were audio-recorded and transcribed verbatim, then analysed using thematic analysis.

Results: Fourteen participant interviews were conducted. Three key themes were identified: 1) 'The new normal' established through adaptation and acceptance; 2) 'Energy as a resource' describing attempts to better manage fatigue through planning and prioritising tasks; 3) 'Keeping healthy' encompasses participants' beliefs that 'good health' allows better management of fatigue.

Conclusion: Participants establish a 'new' normality, through maintaining the same or similar level of employment/education activities. However, this is often at the expense of social activities. Further research is required to explore patient led self-management interventions in IBD fatigue.

Citing Articles

The Role of Chronic Fatigue in Patients with Crohn's Disease.

Wlodarczyk M, Makaro A, Prusisz M, Wlodarczyk J, Nowocien M, Marynczak K Life (Basel). 2023; 13(8).

PMID: 37629549 PMC: 10455565. DOI: 10.3390/life13081692.

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