Evolving Attitudes Toward Numeric Pain Assessment Among Patients with Hypermobile Ehlers-Danlos Syndrome: A Qualitative Interview Study

Overview

Journal Pain Med

Specialties Critical Care
Neurology
Psychiatry

Date 2022 Nov 2

PMID 36322007

Authors

Colin M E Halverson

Kurt Kroenke

Heather L Penwell

Clair A Francomano

Affiliations

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The need for primary care providers in the clinical management of hypermobility spectrum disorders and ehlers-danlos syndrome: a call to action.

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PMID: 39110211 DOI: 10.1007/s00296-024-05676-4.

An exploration of the journey to diagnosis of Ehlers-Danlos Syndrome (EDS) for women living in Australia.

Trudgian R, Flood T PLoS One. 2024; 19(7):e0307574.

PMID: 39052631 PMC: 11271888. DOI: 10.1371/journal.pone.0307574.

A qualitative study of pain and related symptoms experienced by people with Ehlers-Danlos syndromes.

Schubart J, Mills S, Francomano C, Stuckey-Peyrot H Front Med (Lausanne). 2024; 10:1291189.

PMID: 38235272 PMC: 10792024. DOI: 10.3389/fmed.2023.1291189.

Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes.

Halverson C, Penwell H, Francomano C SSM Qual Res Health. 2023; 3.

PMID: 37426705 PMC: 10328215. DOI: 10.1016/j.ssmqr.2023.100237.

Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.

Halley M, Halverson C, Tabor H, Goldenberg A Am J Bioeth. 2023; 23(7):17-26.

PMID: 37204146 PMC: 10321139. DOI: 10.1080/15265161.2023.2207500.

References

Halverson C, Clayton E, Garcia Sierra A, Francomano C . Patients with Ehlers-Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey. Am J Med Genet C Semin Med Genet. 2021; 187(4):416-424. DOI: 10.1002/ajmg.c.31935. View

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Tinkle B, Castori M, Berglund B, Cohen H, Grahame R, Kazkaz H . Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome Type III and Ehlers-Danlos syndrome hypermobility type): Clinical description and natural history. Am J Med Genet C Semin Med Genet. 2017; 175(1):48-69. DOI: 10.1002/ajmg.c.31538. View

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