Peer and Non-Peer Academic Scientists and Peer Support Specialist Community of Practice: Stakeholder Engagement to Advance the Science of Peer Support

Overview

Journal Proc IEEE Glob Humanit Technol Conf

Specialty Public Health

Date 2022 May 2

PMID 35498510

Authors

Karen Fortuna

Mbita Mbao

Arya Kadakia

Amanda Myers

Daniel Fischer

Sandi MacDonald

Sheila Brunchet

Iga Hintz

Rebecca Rossom

Jessica Brooks

Joseph Kalisa

Claver Haragirimana

Marianne Storm

George Mois

Emre Umucu

Margaret Almeida

Jennifer Rivera

Yaara Zisman Ilani

Maria Venegas

Robert Walker

Affiliations

Soon will be listed here.

Abstract

Community of Practice, a community-engagement method that encourages a group of people to interact regularly towards a common goal, may promote satisfying experiences in patient-outcomes research among marginalized populations. Peer support specialists are increasingly being involved in peer-informed mental health research due to their lived experiences of mental illness and are an asset in co-designing healthcare programs along with researchers. In 2015, ten scientists and ten mental health service users joined as a Community of Practice that trained to engage in patient-centered outcomes research. The group has so far has presented at 20 conferences, published three book chapters and 30 peer-reviewed publications, and developed two smartphone applications. Of note are the co-production of a smartphone application, a digital peer support certification program, an app decision support tool, and an instrument to assess the value of patient-research partnerships. Future research will assess the feasibility of incorporating more stakeholders to enhance research outcomes.

Citing Articles

Peer Support Specialists and Service Users' Perspectives on Privacy, Confidentiality, and Security of Digital Mental Health.

Venegas M, Brooks J, Myers A, Storm M, Fortuna K IEEE Pervasive Comput. 2022; 21(2):41-50.

PMID: 35814864 PMC: 9267391. DOI: 10.1109/MPRV.2022.3141986.

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