Cohort Profile Update: The Haematological Malignancy Research Network (HMRN) UK Population-based Cohorts

Overview

Journal Int J Epidemiol

Specialty Public Health

Date 2022 Feb 8

PMID 35134983

Authors

Eve Roman

Eleanor Kane

Debra Howell

Maxine Lamb

Timothy Bagguley

Simon Crouch

Daniel Painter

Russell Patmore

Alexandra Smith

Affiliations

Soon will be listed here.

Citing Articles

Information preferences of patients with chronic blood cancer: A qualitative investigation.

Howell D, McCaughan D, Smith A, Patmore R, Roman E PLoS One. 2024; 19(8):e0293772.

PMID: 39163402 PMC: 11335164. DOI: 10.1371/journal.pone.0293772.

The Lymphoma Epidemiology of Outcomes cohort study: Design, baseline characteristics, and early outcomes.

Cerhan J, Maurer M, Link B, Feldman A, Habermann T, Jaye D Am J Hematol. 2024; 99(3):408-421.

PMID: 38217361 PMC: 10981429. DOI: 10.1002/ajh.27202.

Challenges for quality and utilization of real-world data for diffuse large B-cell lymphoma in REALYSA, a LYSA cohort.

Ghesquieres H, Cherblanc F, Belot A, Micon S, Bouabdallah K, Esnault C Blood Adv. 2023; 8(2):296-308.

PMID: 37874913 PMC: 10824688. DOI: 10.1182/bloodadvances.2023010798.

Experiences and preferences for psychosocial support: a qualitative study exploring the views of patients with chronic haematological cancers.

Sheridan R, McCaughan D, Hewison A, Roman E, Smith A, Patmore R BMJ Open. 2023; 13(8):e070467.

PMID: 37597866 PMC: 10441118. DOI: 10.1136/bmjopen-2022-070467.

Molecular subclusters of follicular lymphoma: a report from the United Kingdom's Haematological Malignancy Research Network.

Crouch S, Painter D, Barrans S, Roman E, Beer P, Cooke S Blood Adv. 2022; 6(21):5716-5731.

PMID: 35363872 PMC: 9619185. DOI: 10.1182/bloodadvances.2021005284.

References

Kane E, Painter D, Smith A, Crouch S, Oliver S, Patmore R . The impact of rheumatological disorders on lymphomas and myeloma: a report on risk and survival from the UK's population-based Haematological Malignancy Research Network. Cancer Epidemiol. 2019; 59:236-243. PMC: 6452783. DOI: 10.1016/j.canep.2019.02.014. View

Smith A, Crouch S, Lax S, Li J, Painter D, Howell D . Lymphoma incidence, survival and prevalence 2004-2014: sub-type analyses from the UK's Haematological Malignancy Research Network. Br J Cancer. 2015; 112(9):1575-84. PMC: 4453686. DOI: 10.1038/bjc.2015.94. View

Smith A, Roman E, Howell D, Jones R, Patmore R, Jack A . The Haematological Malignancy Research Network (HMRN): a new information strategy for population based epidemiology and health service research. Br J Haematol. 2009; 148(5):739-53. PMC: 3066245. DOI: 10.1111/j.1365-2141.2009.08010.x. View

Lamb M, Roman E, Howell D, Kane E, Bagguley T, Burton C . Hodgkin lymphoma detection and survival: findings from the Haematological Malignancy Research Network. BJGP Open. 2019; . PMC: 6995857. DOI: 10.3399/bjgpopen19X101668. View

Smith A, Howell D, Patmore R, Jack A, Roman E . Incidence of haematological malignancy by sub-type: a report from the Haematological Malignancy Research Network. Br J Cancer. 2011; 105(11):1684-92. PMC: 3242607. DOI: 10.1038/bjc.2011.450. View

Howell D, Hart R, Smith A, Macleod U, Patmore R, Roman E . 'Unpacking' pathways to lymphoma and myeloma diagnosis: Do experiences align with the Model of Pathways to Treatment? Findings from a UK qualitative study with patients and relatives. BMJ Open. 2020; 10(2):e034244. PMC: 7045052. DOI: 10.1136/bmjopen-2019-034244. View

Smith A, Roman E, Appleton S, Howell D, Johnson R, Burton C . Impact of novel therapies for mantle cell lymphoma in the real world setting: a report from the UK's Haematological Malignancy Research Network (HMRN). Br J Haematol. 2018; 181(2):215-228. PMC: 5947165. DOI: 10.1111/bjh.15170. View

Roman E, Smith A, Appleton S, Crouch S, Kelly R, Kinsey S . Myeloid malignancies in the real-world: Occurrence, progression and survival in the UK's population-based Haematological Malignancy Research Network 2004-15. Cancer Epidemiol. 2016; 42:186-98. PMC: 4911595. DOI: 10.1016/j.canep.2016.03.011. View

Smith A, Howell D, Crouch S, Painter D, Blase J, Wang H . Cohort Profile: The Haematological Malignancy Research Network (HMRN): a UK population-based patient cohort. Int J Epidemiol. 2018; 47(3):700-700g. PMC: 6005016. DOI: 10.1093/ije/dyy044. View

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Lamb M, Smith A, Painter D, Kane E, Bagguley T, Newton R . Health impact of monoclonal gammopathy of undetermined significance (MGUS) and monoclonal B-cell lymphocytosis (MBL): findings from a UK population-based cohort. BMJ Open. 2021; 11(2):e041296. PMC: 7903106. DOI: 10.1136/bmjopen-2020-041296. View

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McCaughan D, Roman E, Smith A, Garry A, Johnson M, Patmore R . Perspectives of bereaved relatives of patients with haematological malignancies concerning preferred place of care and death: A qualitative study. Palliat Med. 2019; 33(5):518-530. PMC: 6507303. DOI: 10.1177/0269216318824525. View

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Lacy S, Barrans S, Beer P, Painter D, Smith A, Roman E . Targeted sequencing in DLBCL, molecular subtypes, and outcomes: a Haematological Malignancy Research Network report. Blood. 2020; 135(20):1759-1771. PMC: 7259825. DOI: 10.1182/blood.2019003535. View

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Sung H, Ferlay J, Siegel R, Laversanne M, Soerjomataram I, Jemal A . Global Cancer Statistics 2020: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries. CA Cancer J Clin. 2021; 71(3):209-249. DOI: 10.3322/caac.21660. View

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Hewison A, Atkin K, McCaughan D, Roman E, Smith A, Smith G . Experiences of living with chronic myeloid leukaemia and adhering to tyrosine kinase inhibitors: A thematic synthesis of qualitative studies. Eur J Oncol Nurs. 2020; 45:101730. PMC: 7167512. DOI: 10.1016/j.ejon.2020.101730. View

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Wang H, Roman E, Crouch S, Aas E, Burton C, Patmore R . A Generic Model for Follicular Lymphoma: Predicting Cost, Life Expectancy, and Quality-Adjusted-Life-Year Using UK Population-Based Observational Data. Value Health. 2018; 21(10):1176-1185. PMC: 6191529. DOI: 10.1016/j.jval.2018.03.007. View

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Islami F, Ward E, Sung H, Cronin K, Tangka F, Sherman R . Annual Report to the Nation on the Status of Cancer, Part 1: National Cancer Statistics. J Natl Cancer Inst. 2021; 113(12):1648-1669. PMC: 8634503. DOI: 10.1093/jnci/djab131. View

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McCaughan D, Roman E, Smith A, Garry A, Johnson M, Patmore R . Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study. Eur J Oncol Nurs. 2019; 39:70-80. PMC: 6417764. DOI: 10.1016/j.ejon.2019.02.003. View

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Kane E, Painter D, Smith A, Lamb M, Oliver S, Patmore R . Risk of mature B-cell neoplasms and precursor conditions after joint replacement: A report from the Haematological Malignancy Research Network. Int J Cancer. 2019; 147(3):702-708. PMC: 7317514. DOI: 10.1002/ijc.32765. View

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Kane E, Howell D, Smith A, Crouch S, Burton C, Roman E . Emergency admission and survival from aggressive non-Hodgkin lymphoma: A report from the UK's population-based Haematological Malignancy Research Network. Eur J Cancer. 2017; 78:53-60. PMC: 5446261. DOI: 10.1016/j.ejca.2017.03.013. View