» Articles » PMID: 34873354

The COVID-19 Pandemic: The Evaluation of the Emergency Remote Parent Training Program Based on At-home Support for Children with Down Syndrome

Overview
Specialty Pediatrics
Date 2021 Dec 7
PMID 34873354
Citations 1
Authors
Affiliations
Soon will be listed here.
Abstract

During the COVID-19 pandemic, the development of emergency remote training programs for young children with Down syndrome, learning difficulties, and severe health problems and their parents became a requirement. The present study aimed to evaluate the impact of the "applied emergency remote training program", prepared to address the needs of parents with children with Down syndrome and to offer them at-home support. It is an evaluative case study conducted with 11 parents of 11-35 months old children with Down syndrome. The findings demonstrated that the program could be conducted in a home environment, it improved the interactional behavior of both parents and children, reduced the number of difficult routines, and was considered as an educational, instructive, and band-aid solution. Issues such as the development of systematic psycho-social support systems that increase full participation and motivation of parents in distance education programs are important during extreme times such as the pandemic. Difficulties in online data collection, the employment of coaching and counseling systems in information maintenance, individualization of the program, the improvement of the interactivity in the program, and the development of applied training programs on different topics still wait for a solution.

Citing Articles

Tailoring remote special education for children with down syndrome during COVID-19 pandemic in the Philippines.

Cahapay M Int J Dev Disabil. 2024; 70(1):40-48.

PMID: 38456132 PMC: 10916918. DOI: 10.1080/20473869.2022.2056404.

References
1.
Wilson K . The COVID-19 pandemic and the human rights of persons with mental and cognitive impairments subject to coercive powers in Australia. Int J Law Psychiatry. 2020; 73:101605. PMC: 7318936. DOI: 10.1016/j.ijlp.2020.101605. View

2.
Karaaslan O, Mahoney G . Effectiveness of responsive teaching with children with Down syndrome. Intellect Dev Disabil. 2014; 51(6):458-69. DOI: 10.1352/1934-9556-51.6.458. View

3.
Provenzi L, Grumi S, Gardani A, Aramini V, Dargenio E, Naboni C . Italian parents welcomed a telehealth family-centred rehabilitation programme for children with disability during COVID-19 lockdown. Acta Paediatr. 2020; 110(1):194-196. DOI: 10.1111/apa.15636. View

4.
Brown S, Doom J, Lechuga-Pena S, Watamura S, Koppels T . Stress and parenting during the global COVID-19 pandemic. Child Abuse Negl. 2020; 110(Pt 2):104699. PMC: 7440155. DOI: 10.1016/j.chiabu.2020.104699. View

5.
Wainer A, Ingersoll B . Disseminating ASD interventions: a pilot study of a distance learning program for parents and professionals. J Autism Dev Disord. 2012; 43(1):11-24. DOI: 10.1007/s10803-012-1538-4. View