Patient Decision Aid Development for Older Adults With End-Stage Kidney Disease in Singapore

Overview

Journal Kidney Int Rep

Publisher Elsevier

Specialty Nephrology

Date 2021 Nov 22

PMID 34805639

Citations 2

Authors

Semra Ozdemir

Lina Hui Lin Choong

Shien Wen Sheryl Gan

Lydia Wei Lim

Chetna Malhotra

Tazeen H Jafar

Alethea Chung Pheng Yee

Padmini Vishwanath

Si Ning Germaine Tan

Eric Andrew Finkelstein

Affiliations

Soon will be listed here.

Abstract

Introduction: In managing end-stage kidney disease (ESKD), older adults face a decision regarding whether to undergo dialysis or manage symptoms through kidney supportive care (KSC). This article describes the development of a patient decision aid (PDA) that is designed specifically for older adults with ESKD.

Methods: The decision context of the PDA was to choose a treatment between hemodialysis, peritoneal dialysis, and KSC. The development process used insights obtained from qualitative interviews with patients, informal caregivers, and health care providers. The PDA was then developed in English and Mandarin and was pilot-tested with patients, caregivers, and health care providers. We finalized the PDA based on feedback from pilot testing and performed a preliminary evaluation based on the International Patient Decision Aid Standards (IPDASi v4.0) criteria.

Results: The final PDA consists of 2 booklets and a video. During pilot testing, patients and caregivers reported high levels of ease of understanding and usefulness with ≥92.5% providing agree/strongly agree responses for the "Content"-related criteria, and ≥75% providing agree/strongly agree responses for the "Development Process and Effectiveness"-related criteria. The final PDA met 10 of 12 IPDASi v4.0 criteria.

Conclusions: This PDA was found useful during pilot-testing. It will be used during renal counseling in Singapore to help older adults with ESKD and their caregivers make informed decisions on which treatment option is best for the patients.

Citing Articles

Communicating health risk in chronic kidney disease: a scoping review.

Caton E, Aird R, Da Silva-Gane M, Sridharan S, Wellsted D, Sharma S J Nephrol. 2024; 38(1):101-110.

PMID: 39514177 PMC: 11903627. DOI: 10.1007/s40620-024-02098-0.

Decision aids to assist patients and professionals in choosing the right treatment for kidney failure.

Bekker H, Winterbottom A, Gavaruzzi T, Finderup J, Mooney A Clin Kidney J. 2023; 16(Suppl 1):i20-i38.

PMID: 37711634 PMC: 10497379. DOI: 10.1093/ckj/sfad172.

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