Quality Indicators for Transition from Paediatric to Adult Care for Adolescents with Chronic Physical and Mental Illness: Protocol for a Systematic Review

Overview

Journal BMJ Open

Specialty General Medicine

Date 2021 Nov 2

PMID 34725083

Citations 4

Authors

Katherine Bailey

Stephanie Lee

Thomas de Los Reyes

Lisha Lo

Jan Willem Gorter

Alene Toulany

Affiliations

Soon will be listed here.

Abstract

Introduction: Transition from paediatric to adult care is a complex process, which poses significant challenges for adolescents with chronic physical and mental illnesses. For many, transfer to adult care is associated with poor health and psychosocial outcomes. Quality indicators to evaluate transition to adult care are needed to benchmark and compare performance across conditions and health systems. This systematic review aims to identify quality indicators for successful transition to adult care which can be applied across chronic physical and/or mental illnesses.

Methods: Published literature will be searched using MEDLINE, Embase and CINHAL from earliest available date to July 2021. Grey literature will be searched using the Grey Matters tool. Using a set of inclusion/exclusion criteria, two independent reviewers will screen titles and abstracts, followed by full-text review. Disagreements will be resolved by a third reviewer. Study selection and data extraction will follow the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols. Study appraisal will be completed using the Appraisal of Guidelines for Research and Evaluation for Quality Indicators instrument. Extracted quality indicators will be categorised into a conceptual framework.

Ethics And Dissemination: Results from this review will offer novel insights into quality indicators that may be used to measure and evaluate transition success across conditions, which will be disseminated via a Canadian transition collaborative, workshops and peer-reviewed publication. Extracted quality indicators will be further prioritised in a Delphi study with patients, caregivers and providers. This is a critical step in developing a core set of metrics to evaluate transitions to adult care. Ethics approval is not required as this review will identify and synthesise findings from published literature.

Prospero Registration Number: CRD42020198030.

Citing Articles

Evaluating the transition of adolescents and young adults with palliative care needs from pediatric to adult care.

Healy E, Piracha N Health Care Transit. 2024; 2:100072.

PMID: 39712629 PMC: 11657163. DOI: 10.1016/j.hctj.2024.100072.

Quality Indicators for Transition from Pediatric to Adult Care for Youth With Chronic Conditions: Proposal for an Online Modified Delphi Study.

Toulany A, Khodyakov D, Mooney S, Stromquist L, Bailey K, Barber C JMIR Res Protoc. 2024; 13:e60860.

PMID: 38889353 PMC: 11422730. DOI: 10.2196/60860.

Patient, caregiver and other knowledge user engagement in consensus-building healthcare initiatives: a scoping review protocol.

Munce S, Wong E, Luong D, Rao J, Cunningham J, Bailey K BMJ Open. 2024; 14(5):e080822.

PMID: 38719333 PMC: 11086512. DOI: 10.1136/bmjopen-2023-080822.

Sex Differences in Biological Systems and the Conundrum of Menopause: Potential Commonalities in Post-Menopausal Disease Mechanisms.

Hart D Int J Mol Sci. 2022; 23(8).

PMID: 35456937 PMC: 9026302. DOI: 10.3390/ijms23084119.

References

Donabedian A . Evaluating the quality of medical care. 1966. Milbank Q. 2005; 83(4):691-729. PMC: 2690293. DOI: 10.1111/j.1468-0009.2005.00397.x. View

Cooper M, Rouhi A, Barber C . A Systematic Review of Quality Measures for Inflammatory Arthritis. J Rheumatol. 2017; 45(2):274-283. DOI: 10.3899/jrheum.170157. View

Eros A, Soos A, Hegyi P, Szakacs Z, Eross B, Parniczky A . Spotlight on Transition in Patients With Inflammatory Bowel Disease: A Systematic Review. Inflamm Bowel Dis. 2019; 26(3):331-346. DOI: 10.1093/ibd/izz173. View

Sobota A, Shah N, Mack J . Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer. 2016; 64(6). DOI: 10.1002/pbc.26374. View

Viner R . Transition from paediatric to adult care. Bridging the gaps or passing the buck?. Arch Dis Child. 1999; 81(3):271-5. PMC: 1718076. DOI: 10.1136/adc.81.3.271. View

Annunziato R, Baisley M, Arrato N, Barton C, Henderling F, Arnon R . Strangers headed to a strange land? A pilot study of using a transition coordinator to improve transfer from pediatric to adult services. J Pediatr. 2013; 163(6):1628-33. DOI: 10.1016/j.jpeds.2013.07.031. View

Abrahamyan L, Boom N, Donovan L, Tu J . An international environmental scan of quality indicators for cardiovascular care. Can J Cardiol. 2011; 28(1):110-8. DOI: 10.1016/j.cjca.2011.09.019. View

Davis A, Brown R, Taylor J, Epstein R, McPheeters M . Transition care for children with special health care needs. Pediatrics. 2014; 134(5):900-8. PMC: 4533283. DOI: 10.1542/peds.2014-1909. View

Meadows A, Bosco V, Tong E, Fernandes S, Saidi A . Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease. Curr Cardiol Rep. 2009; 11(4):291-7. DOI: 10.1007/s11886-009-0042-8. View

10.

OConnell B, Bailey S, Pearce J . Straddling the pathway from paediatrician to mainstream health care: transition issues experienced in disability care. Aust J Rural Health. 2003; 11(2):57-63. DOI: 10.1046/j.1440-1584.2003.00465.x. View

11.

Kelly A, Niddrie F, Tunnicliffe D, Gonzalez A, Hanson C, Jiang I . Patients' attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review. Rheumatology (Oxford). 2020; 59(12):3737-3750. DOI: 10.1093/rheumatology/keaa168. View

12.

Hearnshaw H, Harker R, Cheater F, Baker R, Grimshaw G . Expert consensus on the desirable characteristics of review criteria for improvement of health care quality. Qual Health Care. 2001; 10(3):173-8. PMC: 1743436. DOI: 10.1136/qhc.0100173... View

13.

Donabedian A . The quality of care. How can it be assessed?. JAMA. 1988; 260(12):1743-8. DOI: 10.1001/jama.260.12.1743. View

14.

Suris J, Akre C . Key elements for, and indicators of, a successful transition: an international Delphi study. J Adolesc Health. 2015; 56(6):612-8. DOI: 10.1016/j.jadohealth.2015.02.007. View

15.

Fair C, Sullivan K, Gatto A . Indicators of transition success for youth living with HIV: perspectives of pediatric and adult infectious disease care providers. AIDS Care. 2011; 23(8):965-70. DOI: 10.1080/09540121.2010.542449. View

16.

Mainz J, Krog B, Bjornshave B, Bartels P . Nationwide continuous quality improvement using clinical indicators: the Danish National Indicator Project. Int J Qual Health Care. 2004; 16 Suppl 1:i45-50. DOI: 10.1093/intqhc/mzh031. View

17.

Luque Ramos A, Hoffmann F, Albrecht K, Klotsche J, Zink A, Minden K . Transition to adult rheumatology care is necessary to maintain DMARD therapy in young people with juvenile idiopathic arthritis. Semin Arthritis Rheum. 2017; 47(2):269-275. DOI: 10.1016/j.semarthrit.2017.05.003. View

18.

Ritchwood T, Malo V, Jones C, Metzger I, Atujuna M, Marcus R . Healthcare retention and clinical outcomes among adolescents living with HIV after transition from pediatric to adult care: a systematic review. BMC Public Health. 2020; 20(1):1195. PMC: 7398377. DOI: 10.1186/s12889-020-09312-1. View

19.

McHugh M . Interrater reliability: the kappa statistic. Biochem Med (Zagreb). 2012; 22(3):276-82. PMC: 3900052. View

20.

Watson A, Harden P, Ferris M, Kerr P, Mahan J, Ramzy M . Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA). Pediatr Nephrol. 2011; 26(10):1753-7. DOI: 10.1007/s00467-011-1981-z. View