Preferences on How to Measure and Discuss Health Related Quality of Life Within Integrated Care for Children with Obesity

Overview

Journal J Patient Rep Outcomes

Specialty Health Services

Date 2021 Oct 14

PMID 34648095

Citations 7

Authors

Minke M A Eilander

Marieke M A van Mil

Leandra W Koetsier

Jacob C Seidell

Jutka Halberstadt

Affiliations

Soon will be listed here.

Abstract

Background: Childhood obesity can affect physical as well as psychosocial wellbeing. Therefore, childhood obesity care aims to improve all dimensions of health related quality of life (HRQoL). HRQoL can be measured with the generic questionnaire PedsQL4.0 and the weight-specific IWQOL-Kids. In the Netherlands, HRQoL assessment is conducted by the coordinating professional (CP). The aim of this qualitative study was to examine how and when to implement the measurement and discussion of HRQoL using the PedsQL4.0 and IWQOL-Kids within the integrated care for children with obesity in the Netherlands. Semi-structured interviews were conducted with fourteen CPs, in which the following was discussed: a) familiarity and attributions with regard to the assessment of HRQoL; b) wishes and needs with regard to the usage of the questionnaires; c) its practical incorporation.

Results: Interviews revealed that most CPs gained insight into the HRQoL by talking with families. One CP used the PedsQL4.0, the remaining CPs were unfamiliar with the two questionnaires. Even though some barriers, for instance a lack of time, might hinder the implementation of the PedsQL4.0 and IWQOL-Kids, all participants think the usage of either one or both questionnaires would have additional value to the support and care for children with obesity. There was no consensus about the questionnaire of preference.

Conclusions: When the right preconditions are met, HRQoL questionnaires have the potential to support CPs in improving the care for children with obesity, tailored to each individual child.

Citing Articles

Evaluation of Health-Related Quality of Life in Adolescents With Obesity: A Randomized Qualitative Study Among Healthcare Professionals.

Kotanidou E, Tsinopoulou V, Karasogiannidou V, Stabouli S, Sapountzi E, Serbis A Cureus. 2024; 16(1):e51928.

PMID: 38333507 PMC: 10851325. DOI: 10.7759/cureus.51928.

Digital Emergency Management for a Complex One Health Landscape: the Need for Standardization, Integration, and Interoperability.

Benis A, Haghi M, Tamburis O, Darmoni S, Grosjean J, Deserno T Yearb Med Inform. 2023; 32(1):27-35.

PMID: 38147847 PMC: 10751113. DOI: 10.1055/s-0043-1768742.

Individualized Implementation of Youth Quality of Life Instrument-Research Version (YQOL-R) Among Chinese Adolescents with Different Weight Status.

Li Y, Jin X, Weng Y, Edwards T, Jiang X, Chen Y Patient Prefer Adherence. 2023; 17:2295-2309.

PMID: 37745633 PMC: 10516194. DOI: 10.2147/PPA.S417847.

Impact of COVID-19 on cancer care pathways in a comprehensive cancer center in northern Italy.

Cigarini F, Daolio J, Caviola G, Pellegri C, Cavuto S, Guberti M Front Public Health. 2023; 11:1187912.

PMID: 37333533 PMC: 10275360. DOI: 10.3389/fpubh.2023.1187912.

The development of the Dutch "National model integrated care for childhood overweight and obesity".

Halberstadt J, Koetsier L, Sijben M, Stroo J, van der Velde M, van Mil E BMC Health Serv Res. 2023; 23(1):359.

PMID: 37046336 PMC: 10091628. DOI: 10.1186/s12913-023-09284-z.

References

Zeller M, Modi A . Predictors of health-related quality of life in obese youth. Obesity (Silver Spring). 2006; 14(1):122-30. DOI: 10.1038/oby.2006.15. View

Eilander M, de Wit M, Rotteveel J, Schaaijk N, Roeleveld-Versteegh A, Snoek F . Implementation of quality of life monitoring in Dutch routine care of adolescents with type 1 diabetes: appreciated but difficult. Pediatr Diabetes. 2015; 17(2):112-9. DOI: 10.1111/pedi.12237. View

Buttitta M, Iliescu C, Rousseau A, Guerrien A . Quality of life in overweight and obese children and adolescents: a literature review. Qual Life Res. 2013; 23(4):1117-39. DOI: 10.1007/s11136-013-0568-5. View

Blair M . Getting evidence into practice--implementation science for paediatricians. Arch Dis Child. 2014; 99(4):307-9. DOI: 10.1136/archdischild-2012-303464. View

de Wit M, Versloot J, Zenlea I, Goethals E . Using Person-Reported Outcomes (PROs) to Motivate Young People with Diabetes. Curr Diab Rep. 2020; 20(7):23. PMC: 7228973. DOI: 10.1007/s11892-020-01305-z. View

Pont S, Puhl R, Cook S, Slusser W . Stigma Experienced by Children and Adolescents With Obesity. Pediatrics. 2017; 140(6). DOI: 10.1542/peds.2017-3034. View

Tong A, Sainsbury P, Craig J . Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6):349-57. DOI: 10.1093/intqhc/mzm042. View

Seidell J, Halberstadt J . National and Local Strategies in the Netherlands for Obesity Prevention and Management in Children and Adolescents. Obes Facts. 2020; 13(4):418-429. PMC: 7590782. DOI: 10.1159/000509588. View

Griffiths L, Parsons T, Hill A . Self-esteem and quality of life in obese children and adolescents: a systematic review. Int J Pediatr Obes. 2010; 5(4):282-304. DOI: 10.3109/17477160903473697. View

10.

de Wit M, Delemarre-van de Waal H, Bokma J, Haasnoot K, Houdijk M, Gemke R . Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: a randomized controlled trial. Diabetes Care. 2008; 31(8):1521-6. PMC: 2494630. DOI: 10.2337/dc08-0394. View

11.

Bryant M, Ashton L, Brown J, Jebb S, Wright J, Roberts K . Systematic review to identify and appraise outcome measures used to evaluate childhood obesity treatment interventions (CoOR): evidence of purpose, application, validity, reliability and sensitivity. Health Technol Assess. 2014; 18(51):1-380. PMC: 4781037. DOI: 10.3310/hta18510. View

12.

Kolotkin R, Zeller M, Modi A, Samsa G, Quinlan N, Yanovski J . Assessing weight-related quality of life in adolescents. Obesity (Silver Spring). 2006; 14(3):448-57. PMC: 2374918. DOI: 10.1038/oby.2006.59. View

13.

Morris A, Macdonald A, Moghraby O, Stringaris A, Hayes R, Simonoff E . Sociodemographic factors associated with routine outcome monitoring: a historical cohort study of 28,382 young people accessing child and adolescent mental health services. Child Adolesc Ment Health. 2020; 26(1):56-64. DOI: 10.1111/camh.12396. View

14.

van Maarschalkerweerd P, Camfferman R, Seidell J, Halberstadt J . Children's, Parents' and Healthcare Professionals' Preferences for Weight-Based Terminology in Health Care. Health Commun. 2020; 36(13):1805-1809. DOI: 10.1080/10410236.2020.1796282. View

15.

Jackson Leach R, Powis J, Baur L, Caterson I, Dietz W, Logue J . Clinical care for obesity: A preliminary survey of sixty-eight countries. Clin Obes. 2020; 10(2):e12357. DOI: 10.1111/cob.12357. View

16.

Snyder C, Aaronson N, Choucair A, Elliott T, Greenhalgh J, Halyard M . Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual Life Res. 2011; 21(8):1305-14. DOI: 10.1007/s11136-011-0054-x. View

17.

Santana M, Feeny D . Framework to assess the effects of using patient-reported outcome measures in chronic care management. Qual Life Res. 2013; 23(5):1505-13. DOI: 10.1007/s11136-013-0596-1. View

18.

Rose M, Bezjak A . Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples. Qual Life Res. 2009; 18(1):125-36. DOI: 10.1007/s11136-008-9436-0. View

19.

Karimi M, Brazier J . Health, Health-Related Quality of Life, and Quality of Life: What is the Difference?. Pharmacoeconomics. 2016; 34(7):645-9. DOI: 10.1007/s40273-016-0389-9. View

20.

Albert C, Davia M . Education is a key determinant of health in Europe: a comparative analysis of 11 countries. Health Promot Int. 2010; 26(2):163-70. DOI: 10.1093/heapro/daq059. View