The Use of Social Media Among the Pediatric Colorectal Community

Overview

Journal Pediatr Surg Int

Specialties General Surgery
Pediatrics

Date 2021 Sep 23

PMID 34554295

Citations 4

Authors

Marina L Reppucci

Luis de la Torre

Alberto Pena

Laura Judd-Glossy

Kaci Pickett

Jill Ketzer

Andrea Bischoff

Affiliations

Soon will be listed here.

Abstract

Purpose: Pediatric colorectal conditions require complex medical care and can require lifelong support. Caregivers often seek medical information on the internet. The aim of this study was to characterize the use of three social media platforms for information sharing about pediatric colorectal conditions.

Methods: A systematic study of Instagram, Facebook, and Twitter was performed using standardized search terms. Accounts with activity within the last year were included. Quantitative data were collected. Accounts were qualitatively assessed and assigned a functional category. Group differences were tested via Kruskal-Wallis test and Fisher's exact tests for continuous and categorical variables, respectively.

Results: A total of 96 Instagram accounts, 57 Twitter accounts, 49 Facebook pages, and 45 Facebook groups were identified. Accounts originated from 24 countries and the greatest number of accounts was created in 2013. The most common source of information on Instagram was from personal accounts (74.0%), on Facebook was from support groups (45.7%), and on Twitter was from health care providers (35.1%), (p < 0.001). The most common functional categories on Instagram were personal story (69.8%), on Twitter were scientific information/medical research (57.9%), and on Facebook were supportive/story sharing (47.8%), (p < 0.001).

Conclusions: Social media serves as a source for medical information and allows for supportive communities for pediatric colorectal patients and their families to exist.

Citing Articles

"The People Criticized Me and Insulted Me Due to Having a Child with Defect": Experiences of Somali Parents of Children with Anorectal Malformation.

Suluhan D, Haji Mohamud R J Multidiscip Healthc. 2024; 17:2789-2798.

PMID: 38863765 PMC: 11166148. DOI: 10.2147/JMDH.S462391.

Examining the Effectiveness of Social Media for the Dissemination of Research Evidence for Health and Social Care Practitioners: Systematic Review and Meta-Analysis.

Roberts-Lewis S, Baxter H, Mein G, Quirke-McFarlane S, Leggat F, Garner H J Med Internet Res. 2024; 26:e51418.

PMID: 38838330 PMC: 11187521. DOI: 10.2196/51418.

Social media communities for patients and families affected by congenital pediatric surgical conditions.

Reppucci M, de la Torre L, Pickett K, Wehrli L, Nolan M, Ketzer J Pediatr Surg Int. 2022; 38(7):1047-1055.

PMID: 35588326 PMC: 9117832. DOI: 10.1007/s00383-022-05139-6.

Considering the value of online support groups for colorectal conditions: perspectives from caregivers and adult patients.

Judd-Glossy L, Ariefdjohan M, Ketzer J, Matkins K, Schletker J, Krause A Pediatr Surg Int. 2021; 38(1):31-42.

PMID: 34562117 PMC: 8475481. DOI: 10.1007/s00383-021-05021-x.

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